Navigating rare cancer care: Patient-reported insights into patient journeys, time to diagnosis, decision-making and care coordination from a national cross-sectional study in Germany
Patients with RC in Germany experience longer diagnostic pathways and fragmented care, highlighting the need for targeted, cross-sectoral care coordination and greater patient empowerment.
Authors
- Theres Fey (ORCID: https://orcid.org/0000-0002-9947-3275)
- Theresia Pichler (ORCID: https://orcid.org/0000-0001-5569-1249)
- Karsten Spiekermann (ORCID: https://orcid.org/0000-0002-5139-4957)
- Anke Steckelberg (ORCID: https://orcid.org/0000-0002-8687-3149)
- Michael von Bergwelt‐Baildon (ORCID: https://orcid.org/0000-0002-1952-052X)
- Sandro Zacher (ORCID: https://orcid.org/0000-0002-3549-0455)
- Julia Lühnen (ORCID: https://orcid.org/0000-0001-8460-4386)
- Volker Heinemann (ORCID: https://orcid.org/0000-0002-1349-3321)
- Karin Berger (ORCID: https://orcid.org/0000-0003-1768-2071)
- Sebastian Theurich (ORCID: https://orcid.org/0000-0001-5706-8258)
- Myrto Boukovala
- Dorit Di Gioia
- C. Benedikt Westphalen (ORCID: https://orcid.org/0000-0002-5310-3754)
- Friederike Mumm (ORCID: https://orcid.org/0000-0003-0026-7779)
- Danmei Zhang (ORCID: https://orcid.org/0000-0001-6048-4711)
- Jana Hinneburg (ORCID: https://orcid.org/0000-0002-7154-9418)
- Christine Spitzweg (ORCID: https://orcid.org/0000-0002-0413-9697)
- Angelika Seitz (ORCID: https://orcid.org/0000-0002-6380-5012)
- Maximilian Reichert (ORCID: https://orcid.org/0000-0002-8611-5639)
- Valentina Colonna
- Michael Schoenberg
- Laura Oestreich
Institutions
- Advisory Board Company (United States) (US)
- LMU Klinikum (DE)
- Humboldt-Universität zu Berlin (DE)
- Technical University of Munich (DE)
- Martin Luther University Halle-Wittenberg (DE)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- European Journal of Cancer
- Published
- 2025-07-05
- DOI
- https://doi.org/10.1016/j.ejca.2025.115602
- Citations
- 1
- Primary Topic
- Global Cancer Incidence and Screening
- Type
- article
- Field-Weighted Citation Impact
- 1.05
Funders
- Gemeinsame Bundesausschuss