Endometriosis– “Either way a tragedy”? A qualitative social media analysis of endometriosis perceptions in Germany

Endometriosis remains stigmatised as a "women's disease", which makes recognition and prioritization in the healthcare system difficult. The reduction to menstruation-related complaints hinders the treatment of endometriosis-related symptoms, while pejorative communication by doctors increases the burden on those affected. While social media enables open dialogue and peer support, it also has potential to spread misinformation, influencing health decisions and fostering scepticism toward medical advice. Addressing these challenges requires a multifaceted public health response: destigmatising endometriosis through education, improving medical training, strengthening diagnostic pathways, and raising awareness in society.