Caregiver At‐Work Productivity Loss at the Time of a Child's Diagnosis With High‐Risk Hodgkin Lymphoma: A Report From the Children's Oncology Group AHOD1331 Study
Caregiver work productivity loss is an important spillover in estimating the costs of pediatric cancer diagnosis and treatment. In this prospective multi-institutional study, cross-sectional analysis of 155 caregivers of children with high-risk Hodgkin lymphoma revealed 9% at-work productivity loss in the four weeks leading up to diagnosis including interference in all four domains measured by the Caregiver Work Limitations Questionnaire: time management, physical tasks, mental-interpersonal tasks, and output tasks. The degree of productivity loss experienced by these caregivers at diagnosis is substantial. Longitudinal analysis of caregiver burden throughout treatment is needed to understand the full extent of the economic impact.
Authors
- Susan K. Parsons (ORCID: https://orcid.org/0000-0003-0282-6490)
- Debra Lerner (ORCID: https://orcid.org/0000-0001-7749-1387)
- Lindsay Anne Renfro (ORCID: https://orcid.org/0000-0002-4306-1896)
- Daniel J. Zheng (ORCID: https://orcid.org/0000-0003-2217-088X)
- Rena M. Conti (ORCID: https://orcid.org/0000-0002-4190-1839)
- Sharon M. Castellino (ORCID: https://orcid.org/0000-0001-8367-2002)
- Tara Olive Henderson (ORCID: https://orcid.org/0000-0001-9394-6206)
- Angie Mae Rodday (ORCID: https://orcid.org/0000-0002-8671-3401)
- Kara M. Kelly (ORCID: https://orcid.org/0000-0003-1473-3937)
- Yue Wu (ORCID: https://orcid.org/0009-0005-8020-2650)
Institutions
- Boston University (US)
- University of Southern California (US)
- Tufts Medical Center (US)
- Roswell Park Comprehensive Cancer Center (US)
- Lurie Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Emory University (US)
- University of Florida (US)
- Aflac (United States) (US)
- Children's Oncology Group (US)
- Children's Healthcare of Atlanta (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2025-06-30
- DOI
- https://doi.org/10.1002/pbc.31841
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- Conquer Cancer Foundation
- Pfizer
- Leukemia and Lymphoma Society
- St. Baldrick's Foundation
- Seagen
- National Institutes of Health
- National Cancer Institute
- National Institute on Minority Health and Health Disparities