Treatment satisfaction in erpidermolysis bullosa patients: the impact of demographic and clinical factors

Aim: Epidermolysis bullosa (EB) is a hereditary disease which causes skin and mucous membrane blistering. While both standard and multidisciplinary care approaches exist for managing EB, the impact of care type on treatment outcomes remains incompletely understood, particularly across different EB subtypes. To compare treatment satisfaction and quality of life outcomes between standard versus multidisciplinary care approaches in pediatric EB patients, and to identify key demographic and clinical factors influencing these outcomes. Material and Methods: This retrospective study evaluated 32 pediatric EB patients (age

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Publication Details

Journal
Turkish Journal of Clinics and Laboratory
Published
2025-06-30
DOI
https://doi.org/10.18663/tjcl.1624016
Primary Topic
Skin and Cellular Biology Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Treatment satisfaction in erpidermolysis bullosa patients: the impact of demographic and clinical factors

Abdülkadir Calavul
Turkish Journal of Clinics and Laboratory
Skin and Cellular Biology Research
article

Treatment satisfaction in erpidermolysis bullosa patients: the impact of demographic and clinical factors

Abdülkadir Calavul
article en

Abstract

Aim: Epidermolysis bullosa (EB) is a hereditary disease which causes skin and mucous membrane blistering. While both standard and multidisciplinary care approaches exist for managing EB, the impact of care type on treatment outcomes remains incompletely understood, particularly across different EB subtypes. To compare treatment satisfaction and quality of life outcomes between standard versus multidisciplinary care approaches in pediatric EB patients, and to identify key demographic and clinical factors influencing these outcomes. Material and Methods: This retrospective study evaluated 32 pediatric EB patients (age

Turkish Journal of Clinics and LaboratoryVol. 16(2)
Sağlık Bilimleri Üniversitesi (TR)
Openalex Percentile: Top 84%
Skin and Cellular Biology Research
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