The Organization of the Family System with a Child with Intellectual Disability

Abstract The birth of a child with a disability demands the organization of the family system, whether from an individual or group perspective. Objective: to analyze the organization of the family system when faced with the birth of a child with intellectual disability. Method: a multiple-case study with parents of five families living in the Federal District, Brazil. Instruments: Sociodemographic Inventory and semistructured interview. Data analysis: lexical analysis using the Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires (IRaMuTeQ). Results: five categories of routine, future, facing the situation, and feelings were formed. Conclusion: Faced with the overload of care, associated with gender roles, parents need strategies to deal with changes in the family structure and dynamics.

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Publication Details

Journal
Psicologia Teoria e Pesquisa
Published
2025-01-01
DOI
https://doi.org/10.1590/0102.3772e41405.en
Primary Topic
Family and Disability Support Research
Type
article
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article

The Organization of the Family System with a Child with Intellectual Disability

Jonas Carvalho e Silva, Carlos Manoel Lopes Rodrigues, Júlia Sursis Nobre Ferro Bucher-Maluschke, Julia Ribeiro Portella Nunes
Psicologia Teoria e Pesquisa
Family and Disability Support Research
article

The Organization of the Family System with a Child with Intellectual Disability

Jonas Carvalho e Silva, Carlos Manoel Lopes Rodrigues, Júlia Sursis Nobre Ferro Bucher-Maluschke, Julia Ribeiro Portella Nunes
article en

Abstract

Abstract The birth of a child with a disability demands the organization of the family system, whether from an individual or group perspective. Objective: to analyze the organization of the family system when faced with the birth of a child with intellectual disability. Method: a multiple-case study with parents of five families living in the Federal District, Brazil. Instruments: Sociodemographic Inventory and semistructured interview. Data analysis: lexical analysis using the Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires (IRaMuTeQ). Results: five categories of routine, future, facing the situation, and feelings were formed. Conclusion: Faced with the overload of care, associated with gender roles, parents need strategies to deal with changes in the family structure and dynamics.

Psicologia Teoria e PesquisaVol. 41
Universidade de Brasília (BR), University Center of Brasília (BR), Universidade Federal do Pará (BR)
Openalex Percentile: Top 79%
Family and Disability Support Research
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The Organization of the Family System with a Child with Intellectual Disability — Jonas Carvalho e Silva, Carlos Manoel Lopes Rodrigues, et al. · Psicologia Teoria e Pesquisa (2025) | TGRS Research Map | TGRS