Achieving Greater Transparency Regarding Molecular HIV Surveillance: A Proposal to Move Beyond the Status Quo
Molecular HIV surveillance is used to in effort to enhance HIV prevention efforts by identifying emerging clusters of rapid HIV transmission. In the United States, it relies upon data from antiretroviral resistance testing done in the context of clinical care. However, information about the public health uses of these data are not always disclosed to patients at the time of testing, which raises ethical concerns. Building upon accumulating data about this practice, a multidisciplinary group argues that there is a need to increase transparency of the practice through active disclosure.
Authors
- Travis Sanchez (ORCID: https://orcid.org/0000-0003-1133-4762)
- Janesse Brewer
- Gail Geller (ORCID: https://orcid.org/0000-0003-4856-1942)
- Juli Murphy Bollinger (ORCID: https://orcid.org/0000-0001-6850-8562)
- Carlos S. Saldana (ORCID: https://orcid.org/0000-0001-8372-9021)
- Jeremy Sugarman (ORCID: https://orcid.org/0000-0001-7022-8332)
- Coralei E. Neighbors (ORCID: https://orcid.org/0000-0002-0367-2983)
- Caroline Lumpkins
- S Mandisa Moore-O’Neal
Institutions
- Johns Hopkins University (US)
- Emory University (US)
- Duke University (US)
- Brooklyn Law School (US)
- Johns Hopkins Medicine (US)
- Johns Hopkins Berman Institute of Bioethics (US)
Publication Details
- Journal
- Open Forum Infectious Diseases
- Published
- 2025-06-18
- DOI
- https://doi.org/10.1093/ofid/ofaf362
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- National Institute of Mental Health