Evaluation of a Decision Support Intervention for Adolescents and Young Adults Newly Diagnosed with Cancer: A Pilot Randomized Trial
Adolescents and young adults with newly diagnosed cancer, and their caregivers, endorsed that decision support is important for their understanding of cancer and treatment and for enhanced communication with their health care teams.Implementation of a decision support intervention shortly after cancer diagnosis is acceptable, feasible, and usable for adolescents and young adults and their caregivers.Oncology clinicians confirm the usability of decision support interventions for their adolescent and young adult patients at diagnosis.Access to a decision support intervention at diagnosis may improve the involvement of adolescents and young adults in their treatment-related decision making and decision processes.Future studies can continue to refine the content and delivery of decision support interventions close to the time of diagnosis, including value of a coach and the role of the caregiver, and targeted to a range of treatment-related decisions.
Authors
- Shannon N. Hammer (ORCID: https://orcid.org/0000-0001-5632-3202)
- Yimei Li (ORCID: https://orcid.org/0000-0001-9067-6992)
- Rochelle Bagatell (ORCID: https://orcid.org/0000-0002-5729-8819)
- Y Wen (ORCID: https://orcid.org/0009-0001-3987-9089)
- Lamia P. Barakat (ORCID: https://orcid.org/0000-0002-0938-4712)
- Lisa A. Schwartz (ORCID: https://orcid.org/0000-0002-7034-9553)
- Marilyn M. Schapira (ORCID: https://orcid.org/0000-0002-3775-9462)
- Janet A. Deatrick (ORCID: https://orcid.org/0000-0002-6447-3259)
- Ashley Anil (ORCID: https://orcid.org/0000-0003-4209-4191)
- Anne Reilly
Institutions
- Children's Hospital of Philadelphia (US)
- University of Pennsylvania (US)
Publication Details
- Journal
- MDM Policy & Practice
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1177/23814683251344624
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Andrew McDonough B+ Foundation