End-of-life dementia care: a qualitative study of the experiences and perceptions of minority ethnic and economically disadvantaged groups
EbE from minority ethnic and socioeconomically disadvantaged groups report poor experiences of EOL dementia care. Our data suggests there is a need to improve multiple aspects of care, including access and coordination. Future research should work with underserved communities to co-produce culturally sensitive interventions to address inequalities in dementia EOL care.
Authors
- Josie Dixon (ORCID: https://orcid.org/0000-0003-4772-6450)
- Marie Poole (ORCID: https://orcid.org/0000-0001-8379-7462)
- Barbara Hanratty (ORCID: https://orcid.org/0000-0002-3122-7190)
- Maria Karagiannidou (ORCID: https://orcid.org/0000-0001-6996-4332)
- Louise Tomkow (ORCID: https://orcid.org/0000-0002-6453-9019)
- Margaret Ogden (ORCID: https://orcid.org/0000-0002-4611-5095)
- Felicity Dewhurst (ORCID: https://orcid.org/0000-0001-9648-5329)
- Efioanwan Damisa (ORCID: https://orcid.org/0000-0003-1535-4576)
- Faith Tissa
- Malcolm Ngouala
Institutions
- Alzheimer's Society (GB)
- University of Manchester (GB)
- Northern Health and Social Care Trust (GB)
- Newcastle University (GB)
- London School of Economics and Political Science (GB)
Publication Details
- Journal
- Age and Ageing
- Published
- 2025-05-31
- DOI
- https://doi.org/10.1093/ageing/afaf168
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00