Lived experience perspectives about gaps and barriers in services for those living with, and those providing care, for people with young-onset dementia in Australia: Findings from the Joint Solutions Project
There is improvement in the diagnosis of YOD but access to and availability of post-diagnostic support varies. More work is needed to improve equity and collaboration between service providers and clinicians and those affected by YOD.
Authors
- Theresa Scott (ORCID: https://orcid.org/0000-0002-6434-7121)
- Rachael C Cvejic (ORCID: https://orcid.org/0000-0001-8026-2155)
- Brian Draper (ORCID: https://orcid.org/0000-0003-1405-7932)
- Naomi Moylan
- Kelly J. Atkins (ORCID: https://orcid.org/0000-0003-0361-2494)
- Margaret Pozzebon (ORCID: https://orcid.org/0000-0002-2472-8413)
- Amanda Fitzgerald (ORCID: https://orcid.org/0000-0001-6873-5474)
- Adrienne Withall (ORCID: https://orcid.org/0000-0001-7079-465X)
- Wendy Kelso (ORCID: https://orcid.org/0000-0001-5418-6080)
- Elissa Burton (ORCID: https://orcid.org/0000-0001-6470-8305)
- Clare Beard (ORCID: https://orcid.org/0000-0002-3059-6947)
- Karen Glennen
- Muireann Irish (ORCID: https://orcid.org/0000-0002-4950-8169)
- Anita Goh (ORCID: https://orcid.org/0000-0003-0159-5926)
- Priscilla Tjokrowijoto (ORCID: https://orcid.org/0000-0002-8005-7845)
- Nathan Martin D'Cunha (ORCID: https://orcid.org/0000-0002-4616-9931)
- Monica Cations (ORCID: https://orcid.org/0000-0002-9262-0463)
- Jade Cartwright (ORCID: https://orcid.org/0000-0002-6381-6184)
- Samantha M. Loi (ORCID: https://orcid.org/0000-0002-4953-4500)
- Lauren Bradley
- Vincent O. Poisson (ORCID: https://orcid.org/0000-0003-4507-7274)
- Kym Torresi
- Daniel Schweitzer
- Robyn Lewis
- Tomy Muringayil Joseph
- Clare Goodlet
- Angela Scovell
- Debbie Stange
Institutions
- The University of Sydney (AU)
- University of Tasmania (AU)
- The Royal Melbourne Hospital (AU)
- The University of Queensland (AU)
- The University of Melbourne (AU)
- Flinders University (AU)
- University of Canberra (AU)
- Curtin University (AU)
- Robina Hospital (AU)
- Wesley Hospital (AU)
- Mater Misericordiae Hospital (AU)
- Speech Pathology Australia (AU)
- UNSW Sydney (AU)
- National Ageing Research Institute (AU)
- Eastern Health (AU)
- Dementia Australia (AU)
- Central Adelaide Local Health Network
- Monash University (AU)
Publication Details
- Journal
- Australian & New Zealand Journal of Psychiatry
- Published
- 2025-06-24
- DOI
- https://doi.org/10.1177/00048674251346681
- Citations
- 5
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 14.08