“I’m not a physician, but i’m the expert for my child” experiences of parents caring for their child with a life-limiting condition in an inpatient setting – A qualitative study
Parents should be supported as equal partners in care to improve the quality of their children's care. Sole medical care is not enough for children with LLC; therefore, a specialized multidisciplinary palliative care team is highly recommended.
Authors
- Monika Führer (ORCID: https://orcid.org/0000-0002-2677-2303)
- Julia Gramm
- Gian Domenico Borasio (ORCID: https://orcid.org/0000-0002-2737-3662)
- Kerstin Hein (ORCID: https://orcid.org/0000-0002-4217-0513)
- Sophie Stößlein (ORCID: https://orcid.org/0000-0002-4232-1617)
Institutions
- LMU Klinikum (DE)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- Palliative & Supportive Care
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1017/s147895152510028x
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49