Financial and Legal Burdens and Discrimination after Surviving a Childhood Cancer Diagnosis in Germany—Results from a Survey in the German Childhood Cancer Survivor Community

Our findings highlight the significant prevalence of lifelong financial and legal burdens and discrimination among childhood cancer survivors. It reveals the urgent need for education, awareness campaigns regarding cancer survival, and legal measures to end discrimination and to establish equal treatment in terms of social and financial issues. Our results contribute to the ongoing discussion surrounding the law named "Right to be Forgotten" and advocate an implementation in Germany.

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Publication Details

Journal
Journal of Adolescent and Young Adult Oncology
Published
2025-06-24
DOI
https://doi.org/10.1089/jayao.2025.0026
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00
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article

Financial and Legal Burdens and Discrimination after Surviving a Childhood Cancer Diagnosis in Germany—Results from a Survey in the German Childhood Cancer Survivor Community

Marie Alfes, Jennifer Gotta, Edward W. Wild, Jette Luedersen et al.
1 links
Journal of Adolescent and Young Adult Oncology
Childhood Cancer Survivors' Quality of Life
article

Financial and Legal Burdens and Discrimination after Surviving a Childhood Cancer Diagnosis in Germany—Results from a Survey in the German Childhood Cancer Survivor Community

Marie Alfes, Jennifer Gotta, Edward W. Wild, Jette Luedersen, Lisa Scharping, Astrid Zehbe, Bjoern Hessing
article en

Abstract

Our findings highlight the significant prevalence of lifelong financial and legal burdens and discrimination among childhood cancer survivors. It reveals the urgent need for education, awareness campaigns regarding cancer survival, and legal measures to end discrimination and to establish equal treatment in terms of social and financial issues. Our results contribute to the ongoing discussion surrounding the law named "Right to be Forgotten" and advocate an implementation in Germany.

Journal of Adolescent and Young Adult OncologyVol. 15(1)
Goethe University Frankfurt (DE), Universität Hamburg (DE), Friedrich-Alexander-Universität Erlangen-Nürnberg (DE), Ludwigshafen University of Business and Society (DE), Universitätsklinikum Erlangen (DE), University Medical Center Hamburg-Eppendorf (DE), University Hospital Frankfurt (DE), Deutsche Kinderkrebsstiftung (DE)
Reduced inequalities
Openalex Percentile: Top 79%
Childhood Cancer Survivors' Quality of Life
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Financial and Legal Burdens and Discrimination after Surviving a Childhood Cancer Diagnosis in Germany—Results from a Survey in the German Childhood Cancer Survivor Community — Marie Alfes, Jennifer Gotta, et al. · Journal of Adolescent and Young Adult Oncology (2025) | TGRS Research Map | TGRS