Patients understanding, perceptions and experiences of head and neck lymphoedema management following treatment for head and neck cancer: a qualitative study

This study identifies key barriers diminishing patients' motivation and competency in HNL self-management, including lack of understanding, appropriate and timely tailored education, and HNL not being a patient priority. This research highlights the need to raise awareness of HNL and its chronicity, to improve the biopsychosocial burden placed on patients and promote motivation for self-management. The development of tailored HNL educational resources, grounded by the patient perspective is required to promote HNL management and improve patient's adherence to self-management techniques.