The impact of multiple sclerosis on wellbeing, productivity, and societal relations

Multiple sclerosis (MS) is the main cause of nontraumatic neurological disabilities in the population under 50 years of age.To evaluate the most prevalent symptoms in a national sample of people with MS and to analyze their correlation with disease characteristics, demographics, quality of life, employment status, and use of social benefits.Cross-sectional, online, self-reported survey, concerning demographic and clinical data, employment status, and use of social benefits.A total of 466 patients answered the survey. The median age at onset was 30 years, the current age, of 39, and disease duration was 8 years. Furthermore, the median patient determined disease steps (PDDS) was 2, which indicates minor to moderate disability. The median MS impact and walking scale scores were 31 and 20%, which denotes minor to moderate quality of life and mobility compromise. Among the participants, 43% suffered fatigue and 51% reported not sleeping well. Unemployed patients had delayed diagnosis and higher disability rates. Furthermore, half of the unemployed patients are receiving some social benefit, compared with only 6.5% of the employed patients.The current study presents symptom prevalence in a national sample of patients with MS and discloses that those with a diagnosis delay and more disability have higher rates of unemployment and use of social benefits. Strategies for earlier diagnosis and better treatment plans can not only reduce patient disability but, possibly, increase employment retention and reduce the use of social benefits.

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Publication Details

Journal
Arquivos de Neuro-Psiquiatria
Published
2025-05-01
DOI
https://doi.org/10.1055/s-0045-1809400
Primary Topic
Multiple Sclerosis Research Studies
Type
article
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article

The impact of multiple sclerosis on wellbeing, productivity, and societal relations

Bruna Rocha Silveira, Gustavo San Martin Elexpe Cardoso, Jean Faber, Denis Bernardi Bichuetti et al.
Arquivos de Neuro-Psiquiatria
Multiple Sclerosis Research Studies
article

The impact of multiple sclerosis on wellbeing, productivity, and societal relations

Bruna Rocha Silveira, Gustavo San Martin Elexpe Cardoso, Jean Faber, Denis Bernardi Bichuetti, Vinicius Eduardo Vergani
article en

Abstract

Multiple sclerosis (MS) is the main cause of nontraumatic neurological disabilities in the population under 50 years of age.To evaluate the most prevalent symptoms in a national sample of people with MS and to analyze their correlation with disease characteristics, demographics, quality of life, employment status, and use of social benefits.Cross-sectional, online, self-reported survey, concerning demographic and clinical data, employment status, and use of social benefits.A total of 466 patients answered the survey. The median age at onset was 30 years, the current age, of 39, and disease duration was 8 years. Furthermore, the median patient determined disease steps (PDDS) was 2, which indicates minor to moderate disability. The median MS impact and walking scale scores were 31 and 20%, which denotes minor to moderate quality of life and mobility compromise. Among the participants, 43% suffered fatigue and 51% reported not sleeping well. Unemployed patients had delayed diagnosis and higher disability rates. Furthermore, half of the unemployed patients are receiving some social benefit, compared with only 6.5% of the employed patients.The current study presents symptom prevalence in a national sample of patients with MS and discloses that those with a diagnosis delay and more disability have higher rates of unemployment and use of social benefits. Strategies for earlier diagnosis and better treatment plans can not only reduce patient disability but, possibly, increase employment retention and reduce the use of social benefits.

Arquivos de Neuro-PsiquiatriaVol. 83(05)
Guarulhos University (BR), Universidade Federal de São Paulo (BR)
Decent work and economic growth
Openalex Percentile: Top 78%
Multiple Sclerosis Research Studies
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The impact of multiple sclerosis on wellbeing, productivity, and societal relations — Bruna Rocha Silveira, Gustavo San Martin Elexpe Cardoso, et al. · Arquivos de Neuro-Psiquiatria (2025) | TGRS Research Map | TGRS