Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains
Subdomains that were considered important for the assessment of HRQoL in patients with cancer can be summarised into: physical symptoms, mobility & activity, future outlook, social roles & activities, family & relationships, social isolation, self-efficacy, overall HRQoL, and healthcare experience. The importance of the subdomains differed for patients in different phases of the cancer care continuum. These findings were used for the creation of the first version of the EUonQoL-Kit, as a base for its further development.
Authors
- Aude Sirven
- Anne Brédart (ORCID: https://orcid.org/0000-0002-1864-5371)
- Montse Ferrer (ORCID: https://orcid.org/0000-0001-9867-7391)
- Augusto Caraceni (ORCID: https://orcid.org/0000-0002-0375-6204)
- Daniela Doege (ORCID: https://orcid.org/0000-0002-7499-5376)
- Norbert Couespel (ORCID: https://orcid.org/0000-0003-1579-8548)
- Lonneke V. van de Poll‐Franse (ORCID: https://orcid.org/0000-0003-0413-6872)
- Maike G. Sweegers (ORCID: https://orcid.org/0000-0003-4892-4061)
- Emma Nicklin (ORCID: https://orcid.org/0000-0002-6683-8098)
- Galina Velikova (ORCID: https://orcid.org/0000-0003-1899-5942)
- Alexandra Gilbert (ORCID: https://orcid.org/0000-0002-9142-1227)
- Leslye Rojas-Concha (ORCID: https://orcid.org/0000-0002-6814-7426)
- Gennaro Ciliberto (ORCID: https://orcid.org/0000-0003-2851-8605)
- Giovanni Apolone (ORCID: https://orcid.org/0000-0001-5179-104X)
- Sara Alfieri (ORCID: https://orcid.org/0000-0002-2183-240X)
- Laura Gangeri
- Maria Alice Franzoi (ORCID: https://orcid.org/0000-0002-2470-6054)
- Helle Pappot (ORCID: https://orcid.org/0000-0002-3570-5372)
- Hugo Vachon (ORCID: https://orcid.org/0000-0003-1259-649X)
- Eva de Jongh (ORCID: https://orcid.org/0000-0001-7316-029X)
- Ricardo Pietrobon (ORCID: https://orcid.org/0000-0003-2996-2193)
- Cinzia Brunelli (ORCID: https://orcid.org/0000-0003-3905-1289)
- Claudio Lombardo (ORCID: https://orcid.org/0000-0001-7554-449X)
- Gabriella Pravettoni (ORCID: https://orcid.org/0000-0002-9135-2938)
- Nanne Bos
- Stein Kaasa (ORCID: https://orcid.org/0000-0002-3268-8036)
- Mogens Grøenvold
- Bianca Scacciati (ORCID: https://orcid.org/0000-0002-3543-6176)
- Christopher Bedding (ORCID: https://orcid.org/0009-0007-9577-1463)
Institutions
- Délégation Paris 5 (FR)
- University of Copenhagen (DK)
- University of Leeds (GB)
- Inserm (FR)
- Universitat Pompeu Fabra (ES)
- German Cancer Research Center (DE)
- University of Milan (IT)
- Tilburg University (NL)
- Heidelberg University (DE)
- Akershus University Hospital (NO)
- Frederiksberg Hospital (DK)
- European CanCer Organisation (BE)
- St James's University Hospital (GB)
- The Netherlands Cancer Institute (NL)
- Netherlands Institute for Health Services Research (NL)
- European Organisation for Research and Treatment of Cancer (BE)
- Organisation of European Cancer Institutes (BE)
- Hospital Del Mar (ES)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública (ES)
- Fondazione IRCCS Istituto Nazionale dei Tumori (IT)
- Institut Curie (FR)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-06-19
- DOI
- https://doi.org/10.1186/s41687-025-00907-z
- Citations
- 3
- Primary Topic
- Cancer survivorship and care
- Type
- article
- Field-Weighted Citation Impact
- 3.14
Funders
- European Commission
- Ministerie van Volksgezondheid, Welzijn en Sport