Caregiving burden among caregivers of people with myasthenia gravis
Informal caregivers of MG patients experience a substantial burden, impacting their physical, emotional, and financial well-being. Findings highlight the need for tailored interventions to alleviate CB and enhance the caregivers' overall HRQoL.
Authors
- Elena Cortés‐Vicente (ORCID: https://orcid.org/0000-0002-1428-1072)
- Femke De Ruyck
- R. C. Pardo (ORCID: https://orcid.org/0000-0002-8264-9430)
- Fiammetta Vanoli (ORCID: https://orcid.org/0000-0002-9081-6462)
- Renato Mantegazza (ORCID: https://orcid.org/0000-0002-9810-5737)
- Sarah Dewilde (ORCID: https://orcid.org/0000-0002-7315-3230)
- Sandra Paci
- Pierre Boulanger (ORCID: https://orcid.org/0000-0002-4219-1699)
- Glenn Phillips (ORCID: https://orcid.org/0000-0002-9676-1909)
- Sophie Lehnerer (ORCID: https://orcid.org/0000-0001-9007-027X)
- Marc Pawlitzki (ORCID: https://orcid.org/0000-0003-3080-2277)
- Nafthali Hananja Tollenaar (ORCID: https://orcid.org/0000-0001-9271-5959)
- Małgorzata Heinrich (ORCID: https://orcid.org/0000-0001-6308-3286)
- Annie Archer
Institutions
- Hospital de Sant Pau (ES)
- Statistics Belgium (BE)
- Humboldt-Universität zu Berlin (DE)
- Düsseldorf University Hospital (DE)
- Association Francaise contre les Myopathies (FR)
- Asociación Española de Urología (ES)
- Amity University (AE)
- Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
- Argenx (Belgium) (BE)
- Fondazione IRCCS Istituto Neurologico Carlo Besta (IT)
- Heinrich Heine University Düsseldorf (DE)
- Sapienza University of Rome (IT)
- Engie (Belgium) (BE)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-06-19
- DOI
- https://doi.org/10.1186/s13023-025-03842-w
- Citations
- 3
- Primary Topic
- Myasthenia Gravis and Thymoma
- Type
- article
- Field-Weighted Citation Impact
- 4.17
Funders
- Argenx