Specific content for education and self-management programmes for people with pulmonary fibrosis: a co-creation, multiphase, mixed-method study
We identified specific, clinically relevant and meaningful PESM content for PF through a co-creation approach with people with PF and HCPs. The findings not only inform current and future PESM programmes, patients and clinicians, but also highlight specific areas for future research.
Authors
- Anne Elizabeth Holland (ORCID: https://orcid.org/0000-0003-2061-845X)
- Sabina A. Guler (ORCID: https://orcid.org/0000-0002-9833-5911)
- Thimo Marcin (ORCID: https://orcid.org/0000-0001-7229-5985)
- Thomas Riegler (ORCID: https://orcid.org/0000-0001-6213-239X)
- Anja Frei (ORCID: https://orcid.org/0000-0002-7134-1000)
- Milo A. Puhan (ORCID: https://orcid.org/0000-0003-4721-1879)
- Kathleen O. Lindell (ORCID: https://orcid.org/0000-0002-3964-5063)
- Patrick Brun
- Markus Wirz
Institutions
- University of Bern (CH)
- Medical University of South Carolina (US)
- ZHAW Zurich University of Applied Sciences (CH)
- University of Zurich (CH)
- University Hospital of Bern (CH)
- The Alfred Hospital (AU)
- Kohler (New Zealand) (NZ)
- Cooperative Trials Group for Neuro-Oncology (AU)
- Monash Alfred Psychiatry Research centre (AU)
Publication Details
- Journal
- ERJ Open Research
- Published
- 2025-06-19
- DOI
- https://doi.org/10.1183/23120541.00245-2025
- Citations
- 2
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 6.24