Pre- and post-amputation healthcare experiences among persons with lower-limb amputations and their relatives: The case of Trinidad and Tobago

For persons at risk for and experiencing amputations, accessible and cost-effective healthcare plays an essential role in prevention and rehabilitation. In Trinidad and Tobago, amputations continue to rise, despite the national healthcare system's attention to prevention, making the country a relevant case for providing insights into experiences of amputations within a healthcare system. The study used a basic interpretive, qualitative design with interviews conducted with 17 persons with lower-limb amputations and 17 relatives across Trinidad and Tobago. Thematic analysis revealed five themes related to the experiences of persons with amputations and their relatives within the healthcare system: a) care prior to amputation reflected missed opportunities for prevention; b) hospital circumstances compounded participants' experiences; c) post-amputation services hindered rehabilitation and ability of relatives to provide effective care; d) integrated services could promote wellbeing of persons with amputations and their relatives; and e) advocacy is necessary but complicated. Holistic, multidisciplinary care would benefit persons with amputations and their relatives, ultimately reducing burden on the healthcare system by contributing to improved health outcomes and quality of life. Recommendations regarding public health and rehabilitation, including considerations for culturally competent healthcare, are discussed.