Integrating patient and public involvement during the COVID-19 pandemic: lessons from COVID-clinical neuroscience study
Despite challenges, this evaluation has demonstrated the critical role of PPI within studies, particularly in this case, for strengthening understanding of how to alleviate the burden for patients of post-COVID-19 sequelae. Sufficient budget must be made available for PPI, and PPI panels must be accessible to a diverse range of people, whilst remaining adaptable to external circumstances.
Authors
- Mark Ellul (ORCID: https://orcid.org/0000-0002-6115-8245)
- Benedict Michael (ORCID: https://orcid.org/0000-0002-8693-8926)
- Emma Collins (ORCID: https://orcid.org/0000-0002-9406-4085)
- Stephen McKeever (ORCID: https://orcid.org/0000-0002-6519-3419)
- Ava Easton (ORCID: https://orcid.org/0000-0002-1739-2915)
- Praveen Prathapan (ORCID: https://orcid.org/0000-0003-2453-9636)
Institutions
- University of Liverpool (GB)
- Walton Centre (GB)
- Encephalitis Society (GB)
- Health Protection Research Unit in Emerging and Zoonotic Infections at University of Liverpool (GB)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2025-06-17
- DOI
- https://doi.org/10.1186/s40900-025-00692-5
- Primary Topic
- Long-Term Effects of COVID-19
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- MQ: Transforming Mental Health
- Medical Research Charities Group