Experiences of an Autism Diagnosis in Adulthood: The Role of Grassroots Epistemology in Clinical Settings

<b>Background:</b> Our research problem mainly concerns the following question: what are the consequences of an autism spectrum condition diagnosis for everyday functioning and self-understanding? <b>Method:</b> The research methodology is based on a semi-structured interview, which allows respondents to share their experiences freely while maintaining the structure and standards necessary to collect consistent data. The research was conducted remotely, using the ZOOM platform and the Messenger application. Six individuals with autism spectrum condition (ASC) diagnosed in adulthood, selected intentionally, participated in the study. Interviews lasted between 20 and 60 min. <b>Results:</b> The analysis of the experiences of individuals with ASC diagnosed in adulthood highlights the complexity of the diagnosis process and its far-reaching consequences. The diagnostic process, which varied in time and depended on the availability of specialists, was often evaluated positively. Obtaining an ASC diagnosis proved to be a crucial moment for the interviewees, enabling them to better understand themselves and their needs. It led to a better adjustment of their work, education, and private life environment. Relationships with loved ones tended to remain unchanged or improved, highlighting the importance of the diagnosis in improving the understanding and acceptance of individuals with ASC. <b>Conclusions:</b> The study sheds light on the positive impact of diagnosis on self-awareness and quality of life for individuals with ASC, revealing the need to improve the availability of specialised diagnostic and support services. Further research should focus on the development and adaptation of support methods to meet the individual needs of individuals with ASC and on promoting awareness of ASC in the community and among mental health professionals.

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Publication Details

Journal
Journal of Clinical Medicine
Published
2025-06-17
DOI
https://doi.org/10.3390/jcm14124315
Citations
2
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
2.86
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article

Experiences of an Autism Diagnosis in Adulthood: The Role of Grassroots Epistemology in Clinical Settings

Maciej Wodziński, Anna Prokopiak, Weronika Superson
2 citations
Journal of Clinical Medicine
Autism Spectrum Disorder Research
2.86
article

Experiences of an Autism Diagnosis in Adulthood: The Role of Grassroots Epistemology in Clinical Settings

Maciej Wodziński, Anna Prokopiak, Weronika Superson
article en
2 citations

Abstract

<b>Background:</b> Our research problem mainly concerns the following question: what are the consequences of an autism spectrum condition diagnosis for everyday functioning and self-understanding? <b>Method:</b> The research methodology is based on a semi-structured interview, which allows respondents to share their experiences freely while maintaining the structure and standards necessary to collect consistent data. The research was conducted remotely, using the ZOOM platform and the Messenger application. Six individuals with autism spectrum condition (ASC) diagnosed in adulthood, selected intentionally, participated in the study. Interviews lasted between 20 and 60 min. <b>Results:</b> The analysis of the experiences of individuals with ASC diagnosed in adulthood highlights the complexity of the diagnosis process and its far-reaching consequences. The diagnostic process, which varied in time and depended on the availability of specialists, was often evaluated positively. Obtaining an ASC diagnosis proved to be a crucial moment for the interviewees, enabling them to better understand themselves and their needs. It led to a better adjustment of their work, education, and private life environment. Relationships with loved ones tended to remain unchanged or improved, highlighting the importance of the diagnosis in improving the understanding and acceptance of individuals with ASC. <b>Conclusions:</b> The study sheds light on the positive impact of diagnosis on self-awareness and quality of life for individuals with ASC, revealing the need to improve the availability of specialised diagnostic and support services. Further research should focus on the development and adaptation of support methods to meet the individual needs of individuals with ASC and on promoting awareness of ASC in the community and among mental health professionals.

Journal of Clinical MedicineVol. 14(12)
Maria Curie-Skłodowska University (PL)
Openalex Percentile: Top 10%
Autism Spectrum Disorder Research
2.86
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Experiences of an Autism Diagnosis in Adulthood: The Role of Grassroots Epistemology in Clinical Settings — Maciej Wodziński, Anna Prokopiak, et al. · Journal of Clinical Medicine (2025) | TGRS Research Map | TGRS