Equity-Focused Palliative and End-of-Life Care in a System Not Designed for it: Qualitative Insights from Service Providers and Recipients

'Equity-focused care' has gained attention in recent years. With widespread use, concepts take on different meanings creating confusion for service providers. This study examines what people experiencing homelessness with life-limiting illnesses value in equity-focused care, and how service providers-who identify their work as equity-focused-describe their roles within a care system that relies on, yet often undervalues, this kind of work. We conducted 11 interviews with service providers and seven with people experiencing homelessness with a life-limiting illness and who received care from a community-based palliative care team in Western Canada. Interviews were transcribed and analyzed via thematic analysis. We constructed three themes: <i>Adapting to Individual Needs; Service Provider Orientation to Practice</i>; and <i>Being Present with People</i>. Themes aligned with two spheres of influence from the Education Training Research's Health Equity Framework: <i>Relationships and Networks</i> and <i>Systems of Power</i>. Findings highlighted that service providers deliver equity-focused care by developing strong relational care networks challenging existing power structures -making this model incongruent with existing individually-focused biomedical care models. Findings transform the theoretical concept, 'equity-focused care', into tangible knowledge that highlights areas for policy change to support equity-focused care.

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Publication Details

Journal
Global Qualitative Nursing Research
Published
2025-06-17
DOI
https://doi.org/10.1177/23333936251350107
Citations
1
Primary Topic
Homelessness and Social Issues
Type
article
Field-Weighted Citation Impact
2.82
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article

Equity-Focused Palliative and End-of-Life Care in a System Not Designed for it: Qualitative Insights from Service Providers and Recipients

Courtney R. Petruik, Katrina Milaney, Hadagay Hagos, Lauren Wan-Sai-Cheong
1 citations
Global Qualitative Nursing Research
Homelessness and Social Issues
2.82
article

Equity-Focused Palliative and End-of-Life Care in a System Not Designed for it: Qualitative Insights from Service Providers and Recipients

Courtney R. Petruik, Katrina Milaney, Hadagay Hagos, Lauren Wan-Sai-Cheong
article en
1 citations

Abstract

'Equity-focused care' has gained attention in recent years. With widespread use, concepts take on different meanings creating confusion for service providers. This study examines what people experiencing homelessness with life-limiting illnesses value in equity-focused care, and how service providers-who identify their work as equity-focused-describe their roles within a care system that relies on, yet often undervalues, this kind of work. We conducted 11 interviews with service providers and seven with people experiencing homelessness with a life-limiting illness and who received care from a community-based palliative care team in Western Canada. Interviews were transcribed and analyzed via thematic analysis. We constructed three themes: <i>Adapting to Individual Needs; Service Provider Orientation to Practice</i>; and <i>Being Present with People</i>. Themes aligned with two spheres of influence from the Education Training Research's Health Equity Framework: <i>Relationships and Networks</i> and <i>Systems of Power</i>. Findings highlighted that service providers deliver equity-focused care by developing strong relational care networks challenging existing power structures -making this model incongruent with existing individually-focused biomedical care models. Findings transform the theoretical concept, 'equity-focused care', into tangible knowledge that highlights areas for policy change to support equity-focused care.

Global Qualitative Nursing ResearchVol. 12
University of Calgary (CA), University of Windsor (CA)
Openalex Percentile: Top 10%
Homelessness and Social Issues
2.82
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Equity-Focused Palliative and End-of-Life Care in a System Not Designed for it: Qualitative Insights from Service Providers and Recipients — Courtney R. Petruik, Katrina Milaney, et al. · Global Qualitative Nursing Research (2025) | TGRS Research Map | TGRS