Equity-Focused Palliative and End-of-Life Care in a System Not Designed for it: Qualitative Insights from Service Providers and Recipients
'Equity-focused care' has gained attention in recent years. With widespread use, concepts take on different meanings creating confusion for service providers. This study examines what people experiencing homelessness with life-limiting illnesses value in equity-focused care, and how service providers-who identify their work as equity-focused-describe their roles within a care system that relies on, yet often undervalues, this kind of work. We conducted 11 interviews with service providers and seven with people experiencing homelessness with a life-limiting illness and who received care from a community-based palliative care team in Western Canada. Interviews were transcribed and analyzed via thematic analysis. We constructed three themes: <i>Adapting to Individual Needs; Service Provider Orientation to Practice</i>; and <i>Being Present with People</i>. Themes aligned with two spheres of influence from the Education Training Research's Health Equity Framework: <i>Relationships and Networks</i> and <i>Systems of Power</i>. Findings highlighted that service providers deliver equity-focused care by developing strong relational care networks challenging existing power structures -making this model incongruent with existing individually-focused biomedical care models. Findings transform the theoretical concept, 'equity-focused care', into tangible knowledge that highlights areas for policy change to support equity-focused care.
Authors
- Courtney R. Petruik (ORCID: https://orcid.org/0000-0002-8666-6385)
- Katrina Milaney (ORCID: https://orcid.org/0000-0003-4761-589X)
- Hadagay Hagos
- Lauren Wan-Sai-Cheong (ORCID: https://orcid.org/0009-0001-3141-560X)
Institutions
- University of Calgary (CA)
- University of Windsor (CA)
Publication Details
- Journal
- Global Qualitative Nursing Research
- Published
- 2025-06-17
- DOI
- https://doi.org/10.1177/23333936251350107
- Citations
- 1
- Primary Topic
- Homelessness and Social Issues
- Type
- article
- Field-Weighted Citation Impact
- 2.82