Perceptions of Social Functioning Among Adolescents Aged 12–14 with Spina Bifida and Their Parents

Minority adolescents with SB face significant barriers to social functioning, particularly due to pain, mobility limitations, and stigma/bullying. However, strong family support and peer relationships played a critical role in fostering social engagement and promoting overall well-being. The study highlights the importance of early interventions and inclusive programs that reduce stigma/bullying and promote social participation for adolescents with SB. Findings provide a voice for underrepresented African American adolescents and insight into the complex interplay of physical, social, and psychological factors affecting adolescents with SB, offering guidance for future interventions aimed at enhancing social functioning.