Information needs for parents of children with autism spectrum disorder: a qualitative study

ABSTRACT Objective: To map the different information needs of parents of children with autism spectrum disorder about their health condition in virtual communities. Method: This qualitative study covers 2022 and 2023, using a thematic content analysis approach and social network analysis in virtual media. The study included three Brazilian virtual communities aimed at parents of children with autism. Results: The posts were organized into “Assessment of children with suspected autism” and “Interventions for children with autism”. Final considerations: The primary information needs are related to children’s rights, behavior, and signs of autism. The study contributes to forming public health, educational, and social policies and recognizing virtual communities with the potential to strengthen care, prevention, and health promotion actions to support the families of autistic children.