Recommended measurement protocols for sickle cell disease in the PhenX toolkit: psychosocial factors and social determinants of health
Recommended protocols enhance the existing Sickle Cell Disease Research Collections and the individual and structural Social Determinants of Health Collections in the PhenX Toolkit. Furthermore, the protocols will promote using validated measurement tools to investigate psychosocial factors and social determinants in sickle cell disease.
Authors
- Lori E. Crosby (ORCID: https://orcid.org/0000-0001-6656-7745)
- Cataia Ives (ORCID: https://orcid.org/0000-0003-3531-7502)
- Allison A. King (ORCID: https://orcid.org/0000-0002-1951-6176)
- Jerlym S. Porter (ORCID: https://orcid.org/0000-0003-0173-6522)
- Dominique Bulgin (ORCID: https://orcid.org/0000-0002-4030-0791)
- Wayne Huggins (ORCID: https://orcid.org/0000-0002-1463-3883)
- Carol M. Hamilton (ORCID: https://orcid.org/0000-0001-9159-3013)
- Sherif M. Badawy (ORCID: https://orcid.org/0000-0002-4739-265X)
- Staci D. Arnold (ORCID: https://orcid.org/0000-0001-6053-8521)
- Desireé N Williford (ORCID: https://orcid.org/0000-0003-1763-5507)
- Marsha Treadwell (ORCID: https://orcid.org/0000-0003-0521-1846)
- Steven J. Hardy (ORCID: https://orcid.org/0000-0002-0491-4980)
- Mark Sullivan (ORCID: https://orcid.org/0000-0002-6808-3688)
Institutions
- Northwestern University (US)
- Cincinnati Children's Hospital Medical Center (US)
- Lurie Children's Hospital (US)
- St. Jude Children's Research Hospital (US)
- Children's National (US)
- Emory University (US)
- RTI International (US)
- University of California, San Francisco (US)
- George Washington University (US)
- Washington University in St. Louis (US)
- California Digital Library (US)
- Knoxville College (US)
- Aflac (United States) (US)
- Lurie Children's Hospital (US)
- UCSF Benioff Children's Hospital (US)
- Comer Children's Hospital (US)
- Children's Healthcare of Atlanta (US)
- University of Tennessee at Knoxville (US)
- University of Cincinnati Medical Center (US)
Publication Details
- Journal
- Journal of sickle cell disease.
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1093/jscdis/yoaf019
- Citations
- 1
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.63
Funders
- Pfizer
- University of Denver
- National Institutes of Health
- National Heart, Lung, and Blood Institute
- National Institute of Mental Health
- National Institute on Drug Abuse
- National Human Genome Research Institute
- National Cancer Institute
- National Institute of Neurological Disorders and Stroke
- Office of Behavioral and Social Sciences Research
- National Institute on Minority Health and Health Disparities