Contextual factors of implementing APOL1 genetic testing into living kidney donor clinical evaluation
Our study identified facilitators and barriers that should be addressed to ensure the APOL1 program's sustainment and potential to improve donors' informed consent. Future research should leverage system-level implementation strategies to overcome identified barriers when taking the APOL1 Genetic Testing and Counseling Program to scale.
Authors
- James L. Merle (ORCID: https://orcid.org/0000-0001-9646-2733)
- Justin D. Smith (ORCID: https://orcid.org/0000-0003-3264-8082)
- John J. Friedewald (ORCID: https://orcid.org/0000-0002-9344-9928)
- Jessica Gacki‐Smith (ORCID: https://orcid.org/0000-0002-7000-9014)
- Elisa J. Gordon (ORCID: https://orcid.org/0000-0003-0969-1998)
- Marissa C. Kuo (ORCID: https://orcid.org/0009-0009-4802-8612)
- Akansha Agrawal (ORCID: https://orcid.org/0000-0003-2662-7023)
Institutions
- Northwestern University (US)
- University of Utah (US)
- Vanderbilt University Medical Center (US)
Publication Details
- Journal
- Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz
- Published
- 2025-06-11
- DOI
- https://doi.org/10.1007/s00103-025-04068-8
- Primary Topic
- Renal Diseases and Glomerulopathies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Northwestern University
- Georgetown University
- National Institutes of Health
- National Institute of Diabetes and Digestive and Kidney Diseases