A reflection on the role of individuals with lived experience in shaping the Brazilian psychiatric reform

In the last ten years, the recovery movement has significantly influenced mental health services and workers, psychiatric reform, and the advocacy movement worldwide. Within Brazil's public mental health care system, operates a cohesive, powerful advocacy coalition empowering recovery-oriented practices. This article aims to highlight successful initiatives spearheaded by individuals with lived experience in Brazil. We will also present some challenges, and discuss possible recovery strategies to strengthen mental health services by empowering people with lived experience and promoting social justice. Efforts and initiatives to implement recovery strategies in Brazil are underway, aiming to improve population mental health and substance misuse both within and outside mental health services. These initiatives include peer support, advocacy, testimonies and empowerment, employment, and social, cultural, and artistic initiatives. Some of the challenges to greater participation of individuals with lived experience in this ongoing process of Brazilian psychiatric reform include the following aspects: barriers to the autonomy and independence of lived experience organizations; the longstanding history of racism in Brazilian society; disparities in social indicators such as education and income, between professionals and people with lived experience in mental health and substance misuse. Although progress in Brazil's psychiatric reform has advanced through recovery initiatives, challenges remain in ensuring leadership roles for people with lived experience. Ongoing success depends on their active involvement, alongside advocacy movements and involvement of broader society.

Authors

Institutions

Publication Details

Journal
Irish Journal of Psychological Medicine
Published
2025-06-11
DOI
https://doi.org/10.1017/ipm.2025.20
Citations
1
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
2.82
Controls
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article

A reflection on the role of individuals with lived experience in shaping the Brazilian psychiatric reform

Cristiana Nelise de Paula Araujo, Mark Napoli Costa, Éllen Cristina Ricci, Graziela Reis et al.
1 citations
Irish Journal of Psychological Medicine
Mental Health and Patient Involvement
2.82
article

A reflection on the role of individuals with lived experience in shaping the Brazilian psychiatric reform

Cristiana Nelise de Paula Araujo, Mark Napoli Costa, Éllen Cristina Ricci, Graziela Reis, Lívia Sicaroni Rufato, Elizabeth Brown Vallim Brisola, Cristina Andrade Sampaio, Clarissa Mendonça Corradi-Webster, Chyrell Bellamy, Walter Ferreira de Oliveira, Rosa Alba Sarno Oliveira, Beatriz Rezende de Oliveira
article en
1 citations

Abstract

In the last ten years, the recovery movement has significantly influenced mental health services and workers, psychiatric reform, and the advocacy movement worldwide. Within Brazil's public mental health care system, operates a cohesive, powerful advocacy coalition empowering recovery-oriented practices. This article aims to highlight successful initiatives spearheaded by individuals with lived experience in Brazil. We will also present some challenges, and discuss possible recovery strategies to strengthen mental health services by empowering people with lived experience and promoting social justice. Efforts and initiatives to implement recovery strategies in Brazil are underway, aiming to improve population mental health and substance misuse both within and outside mental health services. These initiatives include peer support, advocacy, testimonies and empowerment, employment, and social, cultural, and artistic initiatives. Some of the challenges to greater participation of individuals with lived experience in this ongoing process of Brazilian psychiatric reform include the following aspects: barriers to the autonomy and independence of lived experience organizations; the longstanding history of racism in Brazilian society; disparities in social indicators such as education and income, between professionals and people with lived experience in mental health and substance misuse. Although progress in Brazil's psychiatric reform has advanced through recovery initiatives, challenges remain in ensuring leadership roles for people with lived experience. Ongoing success depends on their active involvement, alongside advocacy movements and involvement of broader society.

Irish Journal of Psychological Medicine
Universidade Federal do Rio de Janeiro (BR), Universidade Federal da Bahia (BR), Universidade de São Paulo (BR), Universidade de Franca (BR), Yale University (US), University of Florida (US), Universidade Federal de Santa Catarina (BR), João Pinheiro Foundation (BR), Centro Universitário de Franca (BR), Faculdade de Ciências Médicas de Minas Gerais (BR), Universidade Estadual de Montes Claros (BR)
Openalex Percentile: Top 11%
Mental Health and Patient Involvement
2.82
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