Optimizing participant and community engagement in cancer genomic sequencing research
Engagement and optimization strategies have informed research planning, conduct, and dissemination across PE-CGS. These approaches and definitions provide a foundation for developing evidence-based practices to strengthen participant and community involvement in cancer genomics research.
Authors
- Norah L. Crossnohere (ORCID: https://orcid.org/0000-0002-2811-1330)
- Bethany M. Kwan (ORCID: https://orcid.org/0000-0002-4013-5618)
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Graham A. Colditz (ORCID: https://orcid.org/0000-0002-7307-0291)
- Jeffrey M. Trent (ORCID: https://orcid.org/0000-0003-0183-4202)
- Elizabeth B Claus (ORCID: https://orcid.org/0000-0002-4430-2049)
- Eliezer M. Van Allen (ORCID: https://orcid.org/0000-0002-0201-4444)
- Roel G.W. Verhaak (ORCID: https://orcid.org/0000-0003-2773-0436)
- Diane M. Diehl (ORCID: https://orcid.org/0009-0001-8965-8874)
- Heinz‐Josef Lenz (ORCID: https://orcid.org/0000-0003-2178-9568)
- Shiraz I. Mishra (ORCID: https://orcid.org/0000-0002-4783-0939)
- Mariana C. Stern (ORCID: https://orcid.org/0000-0001-9777-4683)
- Harold Bland
- Cindy K. Blair (ORCID: https://orcid.org/0000-0001-6698-678X)
- Katherine A. Janeway (ORCID: https://orcid.org/0000-0001-6000-3594)
- Charité Ricker (ORCID: https://orcid.org/0000-0002-0620-9345)
- Cheryl L. Willman (ORCID: https://orcid.org/0000-0002-1524-2622)
- Hyoshin Kim (ORCID: https://orcid.org/0000-0001-9782-5110)
- John F. P. Bridges (ORCID: https://orcid.org/0000-0002-3082-5535)
- Suzanne George (ORCID: https://orcid.org/0000-0002-1284-8493)
- Andrew L. Sussman (ORCID: https://orcid.org/0000-0002-2594-8776)
- John D. Carpten (ORCID: https://orcid.org/0000-0002-6862-2821)
- Ryan C. Fields (ORCID: https://orcid.org/0000-0001-6176-8943)
- Bettina F. Drake (ORCID: https://orcid.org/0000-0001-9340-5848)
- Anne Schuster (ORCID: https://orcid.org/0000-0002-0122-1150)
- Ding Li (ORCID: https://orcid.org/0000-0003-3130-6099)
Institutions
- Broad Institute (US)
- University of Southern California (US)
- Brigham and Women's Hospital (US)
- Translational Genomics Research Institute (US)
- Yale New Haven Hospital (US)
- Washington University in St. Louis (US)
- Yale University (US)
- Jewish Hospital (US)
- City of Hope (US)
- USC Norris Comprehensive Cancer Center (US)
- Dana-Farber Cancer Institute (US)
- New Mexico Cancer Center (US)
- Dana-Farber/Boston Children's Cancer and Blood Disorders Center (US)
- University of Colorado Anschutz Medical Campus (US)
- The Ohio State University (US)
Publication Details
- Journal
- Genetics in Medicine
- Published
- 2025-06-11
- DOI
- https://doi.org/10.1016/j.gim.2025.101483
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Cancer Institute