Dangerous Disclosure: An Autoethnographic Account of My Autism Diagnosis and the Social Work Profession

The disclosing of an autism diagnosis presents particular challenge for autistic mothers, especially for those autistic mothers who are additionally advocating for their autistic children within public service provision. Research into autism and parental blame demonstrates how autistic mothers are disproportionately exposed to aspects of mother-blame. Disclosure of an autism diagnosis for autistic mothers can therefore be understood as a complex decision-making process whereby managing autistic identity and understanding autistic self are impacted by the additional need to manage the perceptions of others and associated stigma. The decision-making process is further influenced by the tangible consequences of mother-blame (child removal) which raises questions around how much autonomy and free will autistic mothers hold with regards to exercising choice in diagnostic disclosure. This paper presents the experiences of one autistic mother (the author), examining her disclosure to children’s social work practitioners and the subsequent social work consideration of parenting capability.

Authors

Publication Details

Journal
Ought The Journal of Autistic Culture
Published
2025-06-06
DOI
https://doi.org/10.9707/2833-1508.1212
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Dangerous Disclosure: An Autoethnographic Account of My Autism Diagnosis and the Social Work Profession

Alice Running
Ought The Journal of Autistic Culture
Autism Spectrum Disorder Research
article

Dangerous Disclosure: An Autoethnographic Account of My Autism Diagnosis and the Social Work Profession

Alice Running
article en

Abstract

The disclosing of an autism diagnosis presents particular challenge for autistic mothers, especially for those autistic mothers who are additionally advocating for their autistic children within public service provision. Research into autism and parental blame demonstrates how autistic mothers are disproportionately exposed to aspects of mother-blame. Disclosure of an autism diagnosis for autistic mothers can therefore be understood as a complex decision-making process whereby managing autistic identity and understanding autistic self are impacted by the additional need to manage the perceptions of others and associated stigma. The decision-making process is further influenced by the tangible consequences of mother-blame (child removal) which raises questions around how much autonomy and free will autistic mothers hold with regards to exercising choice in diagnostic disclosure. This paper presents the experiences of one autistic mother (the author), examining her disclosure to children’s social work practitioners and the subsequent social work consideration of parenting capability.

Ought The Journal of Autistic CultureVol. 6(2)
Reduced inequalities
Openalex Percentile: Top 88%
Autism Spectrum Disorder Research
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