Between willingness and practice: a nationwide survey of 1,334 German patient organization members on user involvement in digital service development

The findings highlight a notable gap between the broad willingness of PO members to engage in digital service development and the limited actual involvement opportunities currently provided by POs. This suggests that structured involvement processes may not yet be fully established, leaving substantial potential untapped. To gain a more comprehensive understanding, future research should explore POs' perspectives on the feasibility of member involvement, as well as structural and organizational factors that shape these opportunities.