The association of body image with quality of life, psychological assistance and social support in neurofibromatosis type 1 patients: a cross-sectional study
Body image concerns, rather than skin severity, are a key feature for detecting quality of life impairments in these patients. When healthcare professionals detect body image impairments, it is crucial for them to collaborate with patients and either provide or refer them to psychological interventions. This approach helps improve social support, enabling patients to benefit from both their professional and personal environments.
Authors
- Albert Fornieles-Deu (ORCID: https://orcid.org/0000-0002-7944-7328)
- Laura Tuneu i Valls
- Elisabeth Castellanos (ORCID: https://orcid.org/0000-0002-8133-5325)
- Ignacio Blanco (ORCID: https://orcid.org/0000-0002-7414-7481)
- Mercé Jódar (ORCID: https://orcid.org/0000-0002-8913-5977)
- Daniel Muñoz (ORCID: https://orcid.org/0009-0001-8816-8283)
Institutions
- Universitat Autònoma de Barcelona (ES)
- Centro de Investigación Biomédica en Red de Salud Mental (ES)
- Institut d'Investigació en Ciències de la Salut Germans Trias i Pujol (ES)
- Institute of Research and Innovation Parc Tauli (ES)
- Hospital Universitari Germans Trias i Pujol (ES)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-06-06
- DOI
- https://doi.org/10.1186/s13023-025-03729-w
- Primary Topic
- Neurofibromatosis and Schwannoma Cases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Fundació la Marató de TV3
- Generalitat de Catalunya
- Agència de Gestió d'Ajuts Universitaris i de Recerca
- Instituto de Salud Carlos III
- European Regional Development Fund