Assessment of the “MND-Prism” smartphone application as a tool for self-management
MND-Prism shows potential as a self-management tool for MND, addressing critical organizational challenges in care. Participants identified both positive aspects and areas for improvement, particularly in accessibility, customization, and carer integration. These findings provide a foundation for further development and evaluation, ensuring that applications like MND-Prism are responsive to the diverse and evolving needs of the MND community. Future research should validate these findings in larger, more diverse populations and assess the long-term role of digital tools in care coordination and support.
Authors
- Anjali K. Henders (ORCID: https://orcid.org/0000-0003-3672-1451)
- Shyuan Thieu Ngo (ORCID: https://orcid.org/0000-0002-1388-2108)
- Frederik J. Steyn (ORCID: https://orcid.org/0000-0002-4782-3608)
- Rebecca Packer (ORCID: https://orcid.org/0000-0002-5744-7757)
- Jane Milne
- Stephen J. Neville (ORCID: https://orcid.org/0000-0002-1699-6143)
- Laura Ziser
Institutions
- The University of Queensland (AU)
- National Heart Foundation of Australia (AU)
- Royal Brisbane and Women's Hospital (AU)
- Institute of Bioengineering and Nanotechnology (SG)
Publication Details
- Journal
- Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
- Published
- 2025-06-06
- DOI
- https://doi.org/10.1080/21678421.2025.2511119
- Primary Topic
- Digital Mental Health Interventions
- Type
- article
- Field-Weighted Citation Impact
- 0.00