The health-seeking experiences of caregivers of children with cerebral palsy in Thembisa, South Africa: shifting from the voice of medicine to the voice of the caregiver

The findings indicate that caregivers have needs that are separate from those of their children. To ensure that caregivers receive helpful help during their health-seeking attempts, there must be a shift from the traditional paternalistic roles of healthcare providers. Instead, HCPs should view themselves as collaborators with caregivers to ensure that they provide family-centred services. Additionally, the voice of the lifeworld needs to become a central feature of the care provided to caregivers and their children.

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Publication Details

Journal
Disability and Rehabilitation
Published
2025-06-06
DOI
https://doi.org/10.1080/09638288.2025.2513043
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00

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article

The health-seeking experiences of caregivers of children with cerebral palsy in Thembisa, South Africa: shifting from the voice of medicine to the voice of the caregiver

Khetsiwe P. Masuku, Cynthia Sawasawa, Jennifer Watermeyer
Disability and Rehabilitation
Family and Disability Support Research
article

The health-seeking experiences of caregivers of children with cerebral palsy in Thembisa, South Africa: shifting from the voice of medicine to the voice of the caregiver

Khetsiwe P. Masuku, Cynthia Sawasawa, Jennifer Watermeyer
article en

Abstract

The findings indicate that caregivers have needs that are separate from those of their children. To ensure that caregivers receive helpful help during their health-seeking attempts, there must be a shift from the traditional paternalistic roles of healthcare providers. Instead, HCPs should view themselves as collaborators with caregivers to ensure that they provide family-centred services. Additionally, the voice of the lifeworld needs to become a central feature of the care provided to caregivers and their children.

Disability and RehabilitationVol. 48(3)
University of the Witwatersrand (ZA)
University of the Witwatersrand, Johannesburg
Gender equality
Openalex Percentile: Top 82%
Family and Disability Support Research
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The health-seeking experiences of caregivers of children with cerebral palsy in Thembisa, South Africa: shifting from the voice of medicine to the voice of the caregiver — Khetsiwe P. Masuku, Cynthia Sawasawa, et al. · Disability and Rehabilitation (2025) | TGRS Research Map | TGRS