A community-engaged approach to developing common data elements: a case study from the RADx-UP Long COVID common data elements Task Force
Utilization of standardized CDEs does not always work for the communities involved in the research, but creation of a community-involved task force can lead to a meaningful, rich set of CDEs.
Authors
- Allyn Damman
- Warren A. Kibbe (ORCID: https://orcid.org/0000-0001-5622-7659)
- Gabriel A Carrillo (ORCID: https://orcid.org/0000-0002-7821-344X)
- Halima Garba
- George M. Guest
- Helena L Pike Welch (ORCID: https://orcid.org/0009-0001-2654-2348)
Institutions
- University of North Carolina at Chapel Hill (US)
- Duke University (US)
- Clinical Research Institute (US)
Publication Details
- Journal
- JAMIA Open
- Published
- 2025-05-02
- DOI
- https://doi.org/10.1093/jamiaopen/ooaf046
- Primary Topic
- Health, Environment, Cognitive Aging
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institutes of Health