In their eyes: parental experiences navigating pediatric glaucoma diagnosis, treatment, and care in Turkey — a qualitative study

Pediatric glaucoma affects not only vision but all aspects of family life, including finances, sibling relationships, and parental wellbeing. Findings highlight the need for family-centered care models that address both clinical and psychosocial dimensions of pediatric glaucoma. Implementing teleophthalmology services, developing regional expertise through hub-and-spoke models, integrating psychological support, and creating accessible educational resources in Turkish could significantly improve family experiences. This first qualitative study from Turkey provides insights relevant to other middle-income countries with similar healthcare systems.

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Publication Details

Journal
BMC Pediatrics
Published
2025-06-02
DOI
https://doi.org/10.1186/s12887-025-05813-3
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
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article

In their eyes: parental experiences navigating pediatric glaucoma diagnosis, treatment, and care in Turkey — a qualitative study

Cansu Yuksel Elgin, Ceyhun Elgin
BMC Pediatrics
Family and Disability Support Research
article

In their eyes: parental experiences navigating pediatric glaucoma diagnosis, treatment, and care in Turkey — a qualitative study

Cansu Yuksel Elgin, Ceyhun Elgin
article en

Abstract

Pediatric glaucoma affects not only vision but all aspects of family life, including finances, sibling relationships, and parental wellbeing. Findings highlight the need for family-centered care models that address both clinical and psychosocial dimensions of pediatric glaucoma. Implementing teleophthalmology services, developing regional expertise through hub-and-spoke models, integrating psychological support, and creating accessible educational resources in Turkish could significantly improve family experiences. This first qualitative study from Turkey provides insights relevant to other middle-income countries with similar healthcare systems.

BMC PediatricsVol. 25(1)
Istanbul University-Cerrahpaşa (TR), Boğaziçi University (TR)
Openalex Percentile: Top 83%
Family and Disability Support Research
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