“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

Consumer engagement produced important insights that would've otherwise been missed, ensuring the P-PROM ROCK Program empowers patients. For generic P-PROMs to meaningfully impact patient-clinician visits, supports and resources are required to ensure clinical review and action.

Authors

Karen McLean (ORCID: https://orcid.org/0000-0002-8438-2901)
Jessica Taranto (ORCID: https://orcid.org/0000-0002-4290-4863)
Andrew John Palmer (ORCID: https://orcid.org/0000-0002-9703-7891)
Valerie Sung (ORCID: https://orcid.org/0000-0003-2029-6331)
Diana Truong (ORCID: https://orcid.org/0000-0003-4007-8243)
Misel Trajanovska (ORCID: https://orcid.org/0000-0001-6983-0166)
Patrick C. Fowler
Maria Pini (ORCID: https://orcid.org/0000-0002-9995-5370)
Harriet Hiscock (ORCID: https://orcid.org/0000-0003-3017-2770)
Renee Jones (ORCID: https://orcid.org/0000-0002-5332-5226)
Sebastian K. King (ORCID: https://orcid.org/0000-0001-5396-0265)
Andrew Tuan Phuong Dao
Joanna Lawrence (ORCID: https://orcid.org/0000-0002-7913-7274)
Kim Dalziel (ORCID: https://orcid.org/0000-0003-4972-8871)
Kath Feely (ORCID: https://orcid.org/0000-0001-6404-1117)
Nancy J. Devlin (ORCID: https://orcid.org/0000-0002-1561-5361)
Kathe Holmes
Adele Berry
Timothy Robert Wolfe
Kirsten Pini
Einat Martonovich-Lantsberg

Institutions

Royal Children's Hospital (AU)
Royal Women's Hospital (AU)
The University of Melbourne (AU)
Murdoch Children's Research Institute (AU)
Melbourne Health (AU)
Patient Advocate Foundation (US)
Victoria University (AU)

Publication Details

Journal: Quality of Life Research
Published: 2025-05-31
DOI: https://doi.org/10.1007/s11136-025-03996-x
Citations: 2
Primary Topic: Health Systems, Economic Evaluations, Quality of Life
Type: article
Field-Weighted Citation Impact: 6.26

Funders

University of Melbourne
EuroQol Research Foundation

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

Karen McLean, Jessica Taranto, Andrew John Palmer, Valerie Sung, Diana Truong, Misel Trajanovska, Patrick C. Fowler, Maria Pini, Harriet Hiscock, Renee Jones, Sebastian K. King, Andrew Tuan Phuong Dao, Joanna Lawrence, Kim Dalziel, Kath Feely, Nancy J. Devlin, Kathe Holmes, Adele Berry, Timothy Robert Wolfe, Kirsten Pini, Einat Martonovich-Lantsberg

May 31, 2025article en

2 citations

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

Authors

Institutions

Publication Details

Funders

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

Abstract

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