Factors Associated with Family Caregivers’ Intentions to Complete an Advance Directive for Individuals with Dementia: A Cross-Sectional Descriptive Study

<b>Background/Objectives:</b> As dementia progresses, patients often lose decision-making capacity, leaving family members responsible for making critical end-of-life (EOL) care decisions. This cross-sectional descriptive study explored the factors associated with the intention to complete an advance directive (AD) among family caregivers of older adults with dementia in South Korea. <b>Methods</b>: This study surveyed 140 caregivers aged 20 years or older to assess their knowledge of advance directives (ADs), preferences for EOL care, and attitudes toward withdrawing life-sustaining treatment (LST). Data were collected from 1 August to 14 August 2024, and analyzed using descriptive statistics, the Chi-squared test, Fisher's exact test, Spearman's correlation, and logistic regression, with SPSS/WIN 28.0. <b>Results</b>: The intention to complete an AD significantly differed by religion (<i>p</i> = 0.004) and the functional status of the patient with dementia (<i>p</i> = 0.012). There was a positive correlation between intention to complete an AD and knowledge of ADs (r = 0.23, <i>p</i> = 0.007). Factors associated with intention to complete an AD included religion (OR = 4.36, <i>p</i> = 0.028) and knowledge of ADs (OR = 1.16, <i>p</i> = 0.033), explaining 22.2% of the variance, which is considered meaningful in studies dealing with complex psychosocial and behavioral variables. <b>Conclusions</b>: These findings suggest that religious affiliation and knowledge of ADs may contribute to greater emphasis on EOL preparedness and self-determination. To promote informed decision making, it is essential to implement targeted educational interventions-such as community-based workshops, telehealth counseling, and in-clinic guidance-that enhance caregivers' understanding of ADs and empower them in their caregiving roles.

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Journal
Healthcare
Published
2025-05-29
DOI
https://doi.org/10.3390/healthcare13111297
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
0.00

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article

Factors Associated with Family Caregivers’ Intentions to Complete an Advance Directive for Individuals with Dementia: A Cross-Sectional Descriptive Study

Youngji Kim, Haley Park, Sujin Kang
Healthcare
Palliative Care and End-of-Life Issues
article

Factors Associated with Family Caregivers’ Intentions to Complete an Advance Directive for Individuals with Dementia: A Cross-Sectional Descriptive Study

Youngji Kim, Haley Park, Sujin Kang
article en

Abstract

<b>Background/Objectives:</b> As dementia progresses, patients often lose decision-making capacity, leaving family members responsible for making critical end-of-life (EOL) care decisions. This cross-sectional descriptive study explored the factors associated with the intention to complete an advance directive (AD) among family caregivers of older adults with dementia in South Korea. <b>Methods</b>: This study surveyed 140 caregivers aged 20 years or older to assess their knowledge of advance directives (ADs), preferences for EOL care, and attitudes toward withdrawing life-sustaining treatment (LST). Data were collected from 1 August to 14 August 2024, and analyzed using descriptive statistics, the Chi-squared test, Fisher's exact test, Spearman's correlation, and logistic regression, with SPSS/WIN 28.0. <b>Results</b>: The intention to complete an AD significantly differed by religion (<i>p</i> = 0.004) and the functional status of the patient with dementia (<i>p</i> = 0.012). There was a positive correlation between intention to complete an AD and knowledge of ADs (r = 0.23, <i>p</i> = 0.007). Factors associated with intention to complete an AD included religion (OR = 4.36, <i>p</i> = 0.028) and knowledge of ADs (OR = 1.16, <i>p</i> = 0.033), explaining 22.2% of the variance, which is considered meaningful in studies dealing with complex psychosocial and behavioral variables. <b>Conclusions</b>: These findings suggest that religious affiliation and knowledge of ADs may contribute to greater emphasis on EOL preparedness and self-determination. To promote informed decision making, it is essential to implement targeted educational interventions-such as community-based workshops, telehealth counseling, and in-clinic guidance-that enhance caregivers' understanding of ADs and empower them in their caregiving roles.

HealthcareVol. 13(11)
Kongju National University (KR), Daejeon Sun Hospital (KR), Catholic University of Korea (KR)
Kongju National University
Openalex Percentile: Top 83%
Palliative Care and End-of-Life Issues
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