Latin American consensus on hemophilia

Hemophilia is an inherited bleeding disorder linked to the X chromosome, which is classified into type A and type B. This Latin American consensus addresses the gaps in the treatment and follow-up of patients with this disease in the region, aligning local needs with international recommendations.Nominal group and the modified Delphi Panel methodologies were used to reach consensus on 16 key recommendations, including the use of ultrasound for joint monitoring, access to specialized laboratories, patient registries, and the implementation of prophylactic and replacement therapies.Additionally, the importance of multidisciplinary teams, continuous training, and robust public policies is highlighted to improve the comprehensive care of patients with hemophilia in Latin America.

Authors

Publication Details

Journal
Revista Hemostasia y Trombosis
Published
2025-05-30
DOI
https://doi.org/10.24875/rht.m25000040
Primary Topic
Hemophilia Treatment and Research
Type
article
Field-Weighted Citation Impact
0.00

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article

Latin American consensus on hemophilia

Verónica Soto, Maximiliano Berro, Claudia Ochoa, Paulina Sepúlveda et al.
Revista Hemostasia y Trombosis
Hemophilia Treatment and Research
article

Latin American consensus on hemophilia

Verónica Soto, Maximiliano Berro, Claudia Ochoa, Paulina Sepúlveda, Armando R. Estrada-Romero, Adolfo Gaona-Tottil, Felipe Lemos-García, Nancy E. Loayza-Urcia, Katiuska Moreno-Peñarrieta, Krismely Moya-Mejía, Mara Núñez-Toscano, Silvana Oliva-Lara, Gloria Ramos-Ramos, Rafael Aparicio, Ismael Rodríguez-Grecco, Mario G. Arbesú-Ponce, Apsara Boadas-de Sánchez, Silvia Brizuela-Etcheverry, Adriana J. Bustinza-Álvarez, M. Virginia Canónico-Zavalla, Claudia P. Casas-Patarroyo, Dunia Castillo-González
article en

Abstract

Hemophilia is an inherited bleeding disorder linked to the X chromosome, which is classified into type A and type B. This Latin American consensus addresses the gaps in the treatment and follow-up of patients with this disease in the region, aligning local needs with international recommendations.Nominal group and the modified Delphi Panel methodologies were used to reach consensus on 16 key recommendations, including the use of ultrasound for joint monitoring, access to specialized laboratories, patient registries, and the implementation of prophylactic and replacement therapies.Additionally, the importance of multidisciplinary teams, continuous training, and robust public policies is highlighted to improve the comprehensive care of patients with hemophilia in Latin America.

Revista Hemostasia y TrombosisVol. 2(1)
Pfizer, CSL Behring, Novo Nordisk
Openalex Percentile: Top 85%
Hemophilia Treatment and Research
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Latin American consensus on hemophilia — Verónica Soto, Maximiliano Berro, et al. · Revista Hemostasia y Trombosis (2025) | TGRS Research Map | TGRS