Latin American consensus on hemophilia
Hemophilia is an inherited bleeding disorder linked to the X chromosome, which is classified into type A and type B. This Latin American consensus addresses the gaps in the treatment and follow-up of patients with this disease in the region, aligning local needs with international recommendations.Nominal group and the modified Delphi Panel methodologies were used to reach consensus on 16 key recommendations, including the use of ultrasound for joint monitoring, access to specialized laboratories, patient registries, and the implementation of prophylactic and replacement therapies.Additionally, the importance of multidisciplinary teams, continuous training, and robust public policies is highlighted to improve the comprehensive care of patients with hemophilia in Latin America.
Authors
- Verónica Soto (ORCID: https://orcid.org/0009-0002-5227-1470)
- Maximiliano Berro (ORCID: https://orcid.org/0000-0002-7513-5466)
- Claudia Ochoa
- Paulina Sepúlveda
- Armando R. Estrada-Romero
- Adolfo Gaona-Tottil
- Felipe Lemos-García
- Nancy E. Loayza-Urcia
- Katiuska Moreno-Peñarrieta
- Krismely Moya-Mejía
- Mara Núñez-Toscano
- Silvana Oliva-Lara
- Gloria Ramos-Ramos
- Rafael Aparicio
- Ismael Rodríguez-Grecco
- Mario G. Arbesú-Ponce
- Apsara Boadas-de Sánchez
- Silvia Brizuela-Etcheverry
- Adriana J. Bustinza-Álvarez
- M. Virginia Canónico-Zavalla
- Claudia P. Casas-Patarroyo
- Dunia Castillo-González
Publication Details
- Journal
- Revista Hemostasia y Trombosis
- Published
- 2025-05-30
- DOI
- https://doi.org/10.24875/rht.m25000040
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Pfizer
- CSL Behring
- Novo Nordisk