Advancing Real-World Evidence Through a Federated Health Data Network (EHDEN): Descriptive Study

EHDEN is the largest federated health data network in Europe, enabling standardized, General Data Protection Regulation-compliant analysis of RWD across diverse care settings and populations. This descriptive summary of the network's data sources enhances transparency and supports broader efforts to scale federated research. These findings demonstrate EHDEN's potential to enable collaborative studies and generate trusted evidence for public health and regulatory purposes.

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Publication Details

Journal
Journal of Medical Internet Research
Published
2025-05-30
DOI
https://doi.org/10.2196/74119
Citations
4
Primary Topic
Machine Learning in Healthcare
Type
article
Field-Weighted Citation Impact
9.92
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article

Advancing Real-World Evidence Through a Federated Health Data Network (EHDEN): Descriptive Study

Clair Blacketer, Montse Camprubi, Peter R. Rijnbeek, Patrick B. Ryan et al.
4 citations
Journal of Medical Internet Research
Machine Learning in Healthcare
9.92
article

Advancing Real-World Evidence Through a Federated Health Data Network (EHDEN): Descriptive Study

Clair Blacketer, Montse Camprubi, Peter R. Rijnbeek, Patrick B. Ryan, Maxim Moinat, Martijn J. Schuemie, Erica A. Voss
article en
4 citations

Abstract

EHDEN is the largest federated health data network in Europe, enabling standardized, General Data Protection Regulation-compliant analysis of RWD across diverse care settings and populations. This descriptive summary of the network's data sources enhances transparency and supports broader efforts to scale federated research. These findings demonstrate EHDEN's potential to enable collaborative studies and generate trusted evidence for public health and regulatory purposes.

Journal of Medical Internet ResearchVol. 27
Johnson & Johnson (United States) (US), University of California, Los Angeles (US), Erasmus MC (NL), Synapse (Spain) (ES), New York School of Interior Design (US), Columbia University (US), Erasmus University Rotterdam (NL)
Partnerships for the goals
Openalex Percentile: Top 2%
Machine Learning in Healthcare
9.92
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Advancing Real-World Evidence Through a Federated Health Data Network (EHDEN): Descriptive Study — Clair Blacketer, Montse Camprubi, et al. · Journal of Medical Internet Research (2025) | TGRS Research Map | TGRS