National Electronic Oncology Registry in Kazakhstan: Patient’s Journey

The burden of non-communicable diseases (NCDs), particularly cancer, is steadily increasing in Kazakhstan alongside socioeconomic development, highlighting the urgent need for effective national management and control strategies. The Electronic Registry of Oncological Patients (EROP) is a key initiative designed to support this goal by enabling comprehensive surveillance of cancer patients across the country. This review examines the patient journey that informs EROP’s data collection process and explores its potential as a foundation for local cancer epidemiology research. Analysis of the registry reveals extensive coverage of dispensary, outpatient, and inpatient visits, capturing detailed socio-demographic information, diagnoses, treatments, and mortality outcomes. EROP provides valuable insights into cancer morbidity, mortality, and quality of life across spatial and temporal dimensions in Kazakhstan. The review also addresses current limitations and underexplored aspects of the registry, emphasizing the importance of careful interpretation to ensure robust, evidence-based research.