Perspectives of people with cystic fibrosis considering parenthood surrounding preconception and prenatal genetic counseling and testing
pwCF have discrepant views on passing on CF to future offspring, and although there is recognition of the role of genetic counseling and a desire for knowledge from genetic testing, genetic considerations are but one factor involved in parenthood decisions. Future work should develop patient-, provider-, or system-based interventions to best integrate high-quality genetics and genetic counseling care into the CF team for those with CF considering parenthood.
Authors
- Elizabeth M. Felter (ORCID: https://orcid.org/0000-0002-0567-0623)
- Jodie M. Vento (ORCID: https://orcid.org/0000-0002-1413-4785)
- Olivia M. Stransky (ORCID: https://orcid.org/0000-0002-2274-0005)
- Traci M. Kazmerski (ORCID: https://orcid.org/0000-0002-3916-8260)
- Gopika Rajanikanth
- Elinor Langfelder-Schwind
- Asher Prangley
Institutions
- University of Pittsburgh (US)
- Lenox Hill Hospital (US)
Publication Details
- Journal
- Therapeutic Advances in Respiratory Disease
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1177/17534666251340334
- Citations
- 3
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 4.56
Funders
- Cystic Fibrosis Foundation