Fostering continuous quality improvement in a European rare disease network
The ERNICA quality cycle holds tremendous potential for improving the quality of care for patients with rare and complex conditions, both within ERNICA and for other European Reference Networks.
Authors
- Olivia K.C. Spivack (ORCID: https://orcid.org/0000-0002-8627-1383)
- Willemijn F. E. Irvine (ORCID: https://orcid.org/0009-0003-2311-1221)
- Rene M. H. Wijnen (ORCID: https://orcid.org/0000-0001-7266-9713)
- Steffen Husby (ORCID: https://orcid.org/0000-0002-6286-2496)
- Tomas Wester
Institutions
- Karolinska University Hospital (SE)
- University of Southern Denmark (DK)
- Karolinska Institutet (SE)
- Erasmus MC - Sophia Children’s Hospital (NL)
- National Evidenc- based healthcare Collaborating Agency (KR)
Publication Details
- Journal
- Frontiers in Health Services
- Published
- 2025-05-22
- DOI
- https://doi.org/10.3389/frhs.2025.1609018
- Citations
- 4
- Primary Topic
- Health Systems, Economic Evaluations, Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 12.52
Funders
- European Commission