Current Practice Regarding Bleeding Disorders of Unknown Cause in the Netherlands: A National Survey
Our survey shows that Dutch current practice varies but is generally in line with recent ISTH SSC recommendations. Additionally, it describes other clinically relevant topics not included in the international survey, such as follow-up and exclusion of other causes for bleeding. This survey therefore adds to international efforts to unify BDUC definition, diagnostic approach, treatment and follow-up, and to attain broadly supported guidelines.
Authors
- Paul L. den Exter (ORCID: https://orcid.org/0000-0002-1543-5731)
- Iris van Moort (ORCID: https://orcid.org/0000-0002-0248-4710)
- Marieke J. H. A. Kruip (ORCID: https://orcid.org/0000-0002-0265-4871)
- Tirsa T van Duijl
- Marjon H. Cnossen (ORCID: https://orcid.org/0000-0003-1557-2995)
- Saskia E.M. Schols (ORCID: https://orcid.org/0000-0003-2423-2829)
- Maartje van den Biggelaar (ORCID: https://orcid.org/0000-0001-6970-5496)
- Laurens Nieuwenhuizen (ORCID: https://orcid.org/0000-0002-0494-9374)
- Roger E. G. Schutgens (ORCID: https://orcid.org/0000-0002-2762-6033)
- Karina Meijer (ORCID: https://orcid.org/0000-0001-9447-0465)
- Floor Heubel-Moenen (ORCID: https://orcid.org/0000-0002-3281-926X)
- Yvonne Henskens (ORCID: https://orcid.org/0000-0003-0217-6045)
- Amaury Monard (ORCID: https://orcid.org/0009-0007-0208-5764)
- Caroline Mussert (ORCID: https://orcid.org/0009-0009-8970-9473)
- Karin J. Fijnvandraat
Institutions
- University Medical Center Groningen (NL)
- Radboud University Nijmegen (NL)
- Utrecht University (NL)
- Leiden University Medical Center (NL)
- Erasmus MC (NL)
- Radboud University Medical Center (NL)
- University Medical Center Utrecht (NL)
- Sanquin (NL)
- Maastricht University (NL)
- Emma Kinderziekenhuis (NL)
- Máxima Medisch Centrum (NL)
- Erasmus MC - Sophia Children’s Hospital (NL)
- Amsterdam University Medical Centers (NL)
- University of Amsterdam (NL)
- Erasmus University Rotterdam (NL)
Publication Details
- Journal
- Haemophilia
- Published
- 2025-05-27
- DOI
- https://doi.org/10.1111/hae.70065
- Citations
- 1
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 1.77
Funders
- Nederlandse Organisatie voor Wetenschappelijk Onderzoek