End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File

<b><i>Background:</i></b> American Indian and Alaska Native (AI/AN) adults experience higher rates of chronic diseases and mortality than non-Hispanic White (NHW) adults. Hospice can improve quality of life and reduce hospitalizations for those with terminal illness(es). <b><i>Aims:</i></b> To examine hospitalization and hospice use at the end-of-life between AI/AN and NHW patients and the associations of end-of-life hospitalization and hospice use with chronic diseases. <b><i>Design:</i></b> Using data extracted from the 2019 Medicare Master Beneficiary Summary File, we estimated regression models to examine our aims among patients who died in 2019. <b><i>Setting/Participants:</i></b> Our sample included 6975 AI/AN patients and a 5% sample of 53,465 NHW patients aged ≥65 years. <b><i>Measurements:</i></b> Data included patient demographics, health coverage, date of death, diagnosed chronic conditions, hospital inpatient days, and hospice days. The country of study was the United States. <b><i>Results:</i></b> AI/AN patients at the end-of-life were more likely to be hospitalized and less likely to use hospice compared with their NHW counterparts. For both AI/AN and NHW patients, having a chronic condition was associated with increased hospital days; having dementia and cancer was associated with more hospice days; while diabetes, cardiovascular disease, chronic kidney disease, end-stage renal disease, and liver disease were associated with fewer hospice days. <b><i>Conclusions and Relevance:</i></b> Compared with NHW patients, AI/AN patients received poorer quality end-of-life care. More efforts are needed to understand the barriers and facilitators to hospice for AI/AN patients and in developing strategies that improve access to high-quality end-of-life care for AI/AN patients.

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Publication Details

Journal
Journal of Palliative Medicine
Published
2025-05-27
DOI
https://doi.org/10.1089/jpm.2024.0481
Citations
1
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
1.88
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article

End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File

Luohua Jiang, R. Turner Goins, Elizabeth Anderson, Joan O’Connell et al.
1 citations
Journal of Palliative Medicine
Palliative Care and End-of-Life Issues
1.88
article

End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File

Luohua Jiang, R. Turner Goins, Elizabeth Anderson, Joan O’Connell, Ruqoyat Abdulsalam
article en
1 citations

Abstract

<b><i>Background:</i></b> American Indian and Alaska Native (AI/AN) adults experience higher rates of chronic diseases and mortality than non-Hispanic White (NHW) adults. Hospice can improve quality of life and reduce hospitalizations for those with terminal illness(es). <b><i>Aims:</i></b> To examine hospitalization and hospice use at the end-of-life between AI/AN and NHW patients and the associations of end-of-life hospitalization and hospice use with chronic diseases. <b><i>Design:</i></b> Using data extracted from the 2019 Medicare Master Beneficiary Summary File, we estimated regression models to examine our aims among patients who died in 2019. <b><i>Setting/Participants:</i></b> Our sample included 6975 AI/AN patients and a 5% sample of 53,465 NHW patients aged ≥65 years. <b><i>Measurements:</i></b> Data included patient demographics, health coverage, date of death, diagnosed chronic conditions, hospital inpatient days, and hospice days. The country of study was the United States. <b><i>Results:</i></b> AI/AN patients at the end-of-life were more likely to be hospitalized and less likely to use hospice compared with their NHW counterparts. For both AI/AN and NHW patients, having a chronic condition was associated with increased hospital days; having dementia and cancer was associated with more hospice days; while diabetes, cardiovascular disease, chronic kidney disease, end-stage renal disease, and liver disease were associated with fewer hospice days. <b><i>Conclusions and Relevance:</i></b> Compared with NHW patients, AI/AN patients received poorer quality end-of-life care. More efforts are needed to understand the barriers and facilitators to hospice for AI/AN patients and in developing strategies that improve access to high-quality end-of-life care for AI/AN patients.

Journal of Palliative MedicineVol. 28(9)
Western Carolina University (US), Colorado School of Public Health (US), University of California, Irvine (US), Pacific Institute For Research and Evaluation (US), Native Health (US), University of Colorado Anschutz Medical Campus (US)
Openalex Percentile: Top 15%
Palliative Care and End-of-Life Issues
1.88
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