Participant Experiences With a Virtual Peer Coaching and Grief Support Intervention for Organ and Tissue Donor Families
<b>Introduction:</b> Research shows that donor families report feeling abandoned, lacking social support, and receiving insufficient aftercare services. To meet the needs of these families, Taylor's Gift Foundation developed a free, virtual grief support program that pairs participating donor family members with Caring Guides trained in assertive community engagement and offers peer-facilitated support groups. <b>Project Aim:</b> The aim was to assess participant experiences with Taylor's Gift Foundation grief support program to understand its impact on grief symptoms, donor family access to grief support, and perceived social support. <b>Design:</b> Researchers conducted a qualitative evaluation using semi-structured interviews with 21 program participants. Results were analyzed using rapid qualitative analysis and descriptive statistics. <b>Results:</b> Eighteen (86%) participants worked with Caring Guides, 12 (57%) attended an average of 7 support groups, and 8 (39%) worked with Caring Guides and attended support groups. Eleven (52%) program participants reported difficulties accessing mental health services. Most program participants (86%) reported a decrease in grief intensity since enrolling in the program. <b>Conclusion:</b> Effective aftercare services were critical in helping donor families cope with, and adapt to, their loss. The Taylor's Gift Foundation grief support program helped donor family members access otherwise inaccessible grief support services and provided a valuable means of social support.
Authors
- Stephen P. Wall (ORCID: https://orcid.org/0000-0003-3965-5074)
- Allan B. Massie (ORCID: https://orcid.org/0000-0002-5288-5125)
- Brittany Koons (ORCID: https://orcid.org/0000-0002-0852-666X)
- Carolyn N. Sidoti (ORCID: https://orcid.org/0000-0002-0491-7137)
- Jasmine M. Akhtar (ORCID: https://orcid.org/0009-0001-8104-0471)
- Samantha B. Klitenic (ORCID: https://orcid.org/0000-0001-5663-289X)
- Macey Leigh Levan (ORCID: https://orcid.org/0000-0002-4239-1252)
- Tara Storch
- Elizabeth Hughes (ORCID: https://orcid.org/0000-0002-4480-0806)
- Hannah Showalter
- Tessa Flower
- Tara Kane
- Paige Anderson
Institutions
- New York University (US)
- Villanova University (US)
Publication Details
- Journal
- Progress in Transplantation
- Published
- 2025-05-26
- DOI
- https://doi.org/10.1177/15269248251343382
- Primary Topic
- Grief, Bereavement, and Mental Health
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Heart, Lung, and Blood Institute
- National Institute of Diabetes and Digestive and Kidney Diseases