Participant Experiences With a Virtual Peer Coaching and Grief Support Intervention for Organ and Tissue Donor Families

<b>Introduction:</b> Research shows that donor families report feeling abandoned, lacking social support, and receiving insufficient aftercare services. To meet the needs of these families, Taylor's Gift Foundation developed a free, virtual grief support program that pairs participating donor family members with Caring Guides trained in assertive community engagement and offers peer-facilitated support groups. <b>Project Aim:</b> The aim was to assess participant experiences with Taylor's Gift Foundation grief support program to understand its impact on grief symptoms, donor family access to grief support, and perceived social support. <b>Design:</b> Researchers conducted a qualitative evaluation using semi-structured interviews with 21 program participants. Results were analyzed using rapid qualitative analysis and descriptive statistics. <b>Results:</b> Eighteen (86%) participants worked with Caring Guides, 12 (57%) attended an average of 7 support groups, and 8 (39%) worked with Caring Guides and attended support groups. Eleven (52%) program participants reported difficulties accessing mental health services. Most program participants (86%) reported a decrease in grief intensity since enrolling in the program. <b>Conclusion:</b> Effective aftercare services were critical in helping donor families cope with, and adapt to, their loss. The Taylor's Gift Foundation grief support program helped donor family members access otherwise inaccessible grief support services and provided a valuable means of social support.

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Publication Details

Journal
Progress in Transplantation
Published
2025-05-26
DOI
https://doi.org/10.1177/15269248251343382
Primary Topic
Grief, Bereavement, and Mental Health
Type
article
Field-Weighted Citation Impact
0.00

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article

Participant Experiences With a Virtual Peer Coaching and Grief Support Intervention for Organ and Tissue Donor Families

Stephen P. Wall, Allan B. Massie, Brittany Koons, Carolyn N. Sidoti et al.
Progress in Transplantation
Grief, Bereavement, and Mental Health
article

Participant Experiences With a Virtual Peer Coaching and Grief Support Intervention for Organ and Tissue Donor Families

Stephen P. Wall, Allan B. Massie, Brittany Koons, Carolyn N. Sidoti, Jasmine M. Akhtar, Samantha B. Klitenic, Macey Leigh Levan, Tara Storch, Elizabeth Hughes, Hannah Showalter, Tessa Flower, Tara Kane, Paige Anderson
article en

Abstract

<b>Introduction:</b> Research shows that donor families report feeling abandoned, lacking social support, and receiving insufficient aftercare services. To meet the needs of these families, Taylor's Gift Foundation developed a free, virtual grief support program that pairs participating donor family members with Caring Guides trained in assertive community engagement and offers peer-facilitated support groups. <b>Project Aim:</b> The aim was to assess participant experiences with Taylor's Gift Foundation grief support program to understand its impact on grief symptoms, donor family access to grief support, and perceived social support. <b>Design:</b> Researchers conducted a qualitative evaluation using semi-structured interviews with 21 program participants. Results were analyzed using rapid qualitative analysis and descriptive statistics. <b>Results:</b> Eighteen (86%) participants worked with Caring Guides, 12 (57%) attended an average of 7 support groups, and 8 (39%) worked with Caring Guides and attended support groups. Eleven (52%) program participants reported difficulties accessing mental health services. Most program participants (86%) reported a decrease in grief intensity since enrolling in the program. <b>Conclusion:</b> Effective aftercare services were critical in helping donor families cope with, and adapt to, their loss. The Taylor's Gift Foundation grief support program helped donor family members access otherwise inaccessible grief support services and provided a valuable means of social support.

Progress in TransplantationVol. 35(2)
New York University (US), Villanova University (US)
National Heart, Lung, and Blood Institute, National Institute of Diabetes and Digestive and Kidney Diseases
Openalex Percentile: Top 84%
Grief, Bereavement, and Mental Health
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