Qualitative study of fatigue in adults with primary mitochondrial disease: Development of the PROMIS Fatigue Mitochondrial Disease Short Form
The nine-item PROMIS Fatigue Mitochondrial Disease Short Form is the first PROM designed specifically to assess fatigue in PMD. This study demonstrates the content validity of the short form, and future longitudinal studies will assess its psychometric properties.
Authors
- Gráinne S. Gorman (ORCID: https://orcid.org/0000-0002-7585-3409)
- Magnus J. Hansson (ORCID: https://orcid.org/0000-0002-0201-0638)
- Renae J. Stefanetti (ORCID: https://orcid.org/0000-0001-6402-6435)
- Amel Karaa (ORCID: https://orcid.org/0000-0001-5781-9824)
- Sarah Clifford (ORCID: https://orcid.org/0000-0002-5799-7214)
- Roxana Bahar
Institutions
- Lund University (SE)
- Massachusetts General Hospital (US)
- Wellcome Centre for Mitochondrial Research (GB)
- Newcastle University (GB)
Publication Details
- Journal
- Molecular Genetics and Metabolism
- Published
- 2025-05-26
- DOI
- https://doi.org/10.1016/j.ymgme.2025.109153
- Citations
- 2
- Primary Topic
- Mitochondrial Function and Pathology
- Type
- article
- Field-Weighted Citation Impact
- 1.61