Claiming normal: Disability, stigma, and relationality in Amman

Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. "Normal" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming "normal" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.

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Publication Details

Journal
Medical Anthropology Quarterly
Published
2025-05-26
DOI
https://doi.org/10.1111/maq.70003
Primary Topic
Disability Rights and Representation
Type
article
Field-Weighted Citation Impact
0.00

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article

Claiming normal: Disability, stigma, and relationality in Amman

Christine Sargent
Medical Anthropology Quarterly
Disability Rights and Representation
article

Claiming normal: Disability, stigma, and relationality in Amman

Christine Sargent
article en

Abstract

Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. "Normal" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming "normal" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.

Medical Anthropology QuarterlyVol. 39(4)
University of Colorado Denver (US)
Wenner-Gren Foundation, Fulbright Association, Horace H. Rackham School of Graduate Studies, University of Michigan
Openalex Percentile: Top 89%
Disability Rights and Representation
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