What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents
Children and parents are experts in their condition and should be actively involved in care discussions, through communication tailored to the child's pace and preferences, and support advocating for and coordinating care services. Fostering strong and collaborative relationships builds trust and helps children and families to feel safe, included and supported.
Authors
- Daney Harðardóttir
- Lorna Fraser (ORCID: https://orcid.org/0000-0002-1360-4191)
- Clare Ellis‐Smith (ORCID: https://orcid.org/0000-0003-3453-3203)
- Fliss EM Murtagh (ORCID: https://orcid.org/0000-0003-1289-3726)
- Lucy Coombes (ORCID: https://orcid.org/0000-0002-7833-1016)
- Hannah May Scott (ORCID: https://orcid.org/0000-0003-1243-3500)
- Katherine Bristowe (ORCID: https://orcid.org/0000-0003-1809-217X)
- Julia D Downing (ORCID: https://orcid.org/0000-0002-3450-785X)
- Debbie Braybrook (ORCID: https://orcid.org/0000-0001-9253-4955)
- Myra Bluebond‐Langner (ORCID: https://orcid.org/0000-0001-9281-5431)
- Richard Harding (ORCID: https://orcid.org/0000-0001-9653-8689)
- Anna Roach (ORCID: https://orcid.org/0000-0002-0635-0429)
- Jemimah Bariuan
Institutions
- Rutgers, The State University of New Jersey (US)
- Royal Marsden NHS Foundation Trust (GB)
- King's College London (GB)
- University of Hull (GB)
- Great Ormond Street Hospital (GB)
- African Palliative Care Association (UG)
- King's College School (GB)
- Cicely Saunders International (GB)
- University College London (GB)
- Hull York Medical School (GB)
Publication Details
- Journal
- Patient
- Published
- 2025-05-25
- DOI
- https://doi.org/10.1007/s40271-025-00744-8
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- H2020 European Research Council