The Time <scp>Has</scp> Come: Indigenous Peoples Worldwide Must Now Exercise Their Human Rights and Take Full Control Over Their Data Sovereignty Rights

This article examines the ongoing exploitation of Indigenous Peoples' research data and health data, and the urgent need for Indigenous data sovereignty in Australia. Despite ethical research frameworks, Indigenous Peoples health data continues to be collected, controlled, and used by non-Indigenous institutions, limiting community access and decision-making. Ethical engagement with Indigenous health data is crucial for the success of the Closing the Gap initiatives. Strengthening Indigenous governance over health data, and ethical research practices, is essential for meaningful progress. This paper advocates for policy reforms, Indigenous-led research governance and Indigenous data sovereignty.

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Institutions

Publication Details

Journal
Health Promotion Journal of Australia
Published
2025-05-24
DOI
https://doi.org/10.1002/hpja.70055
Citations
1
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
1.88

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article

The Time Has Come: Indigenous Peoples Worldwide Must Now Exercise Their Human Rights and Take Full Control Over Their Data Sovereignty Rights

Naomi Howell, Lynne Stuart
1 citations
Health Promotion Journal of Australia
Ethics in Clinical Research
1.88
article

The Time Has Come: Indigenous Peoples Worldwide Must Now Exercise Their Human Rights and Take Full Control Over Their Data Sovereignty Rights

Naomi Howell, Lynne Stuart
article en
1 citations

Abstract

This article examines the ongoing exploitation of Indigenous Peoples' research data and health data, and the urgent need for Indigenous data sovereignty in Australia. Despite ethical research frameworks, Indigenous Peoples health data continues to be collected, controlled, and used by non-Indigenous institutions, limiting community access and decision-making. Ethical engagement with Indigenous health data is crucial for the success of the Closing the Gap initiatives. Strengthening Indigenous governance over health data, and ethical research practices, is essential for meaningful progress. This paper advocates for policy reforms, Indigenous-led research governance and Indigenous data sovereignty.

Health Promotion Journal of AustraliaVol. 36(3)
University of the Sunshine Coast (AU)
University of the Sunshine Coast
Peace, Justice and strong institutions
Openalex Percentile: Top 15%
Ethics in Clinical Research
1.88
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