Assessing the socioeconomic burden in pediatric inflammatory bowel disease—a survey of families and national providers

This is the first study in Canada to directly explore national provider practices and the socioeconomic burden on families of children with IBD. Results indicate a good correlation between provider awareness and the increased financial burden on families but suggest ongoing care gaps to address impacts on employment, mental health, and out-of-pocket costs. This data suggests that various quality improvement opportunities for research and advocacy exist to better support families, both locally and beyond.