Self-Stigma in Adults Living With Chronic Skin Disease: Development of the HautKompass Web-Based Program and Pilot Test of Its Usability, Acceptability, and Feasibility

Overall, HautKompass was found to be a usable, acceptable program with feasible implementation. Limitations of this pilot study include not testing accessibility for people with disabilities and the small, relatively young, and mostly female sample, which limits the generalizability of the findings. The feedback obtained was used to revise the program and the recruitment strategy prior to testing its effectiveness in a randomized controlled trial. If HautKompass is found to be effective in reducing skin disease-related self-stigma, it will be made widely available to improve psychosocial care for people with chronic skin disease and could be adapted for other skin diseases and visible differences in general.

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Publication Details

Journal
JMIR Formative Research
Published
2025-05-22
DOI
https://doi.org/10.2196/70290
Primary Topic
Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
Type
article
Field-Weighted Citation Impact
0.00

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article

Self-Stigma in Adults Living With Chronic Skin Disease: Development of the HautKompass Web-Based Program and Pilot Test of Its Usability, Acceptability, and Feasibility

Christian Stierle, Vahid Djamei, Juliane Traxler, Neuza Silva et al.
JMIR Formative Research
Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
article

Self-Stigma in Adults Living With Chronic Skin Disease: Development of the HautKompass Web-Based Program and Pilot Test of Its Usability, Acceptability, and Feasibility

Christian Stierle, Vahid Djamei, Juliane Traxler, Neuza Silva, Rachel Sommer, Caroline F. Z. Stuhlmann, Marie Rudnik, Anna Darzina
article en

Abstract

Overall, HautKompass was found to be a usable, acceptable program with feasible implementation. Limitations of this pilot study include not testing accessibility for people with disabilities and the small, relatively young, and mostly female sample, which limits the generalizability of the findings. The feedback obtained was used to revise the program and the recruitment strategy prior to testing its effectiveness in a randomized controlled trial. If HautKompass is found to be effective in reducing skin disease-related self-stigma, it will be made widely available to improve psychosocial care for people with chronic skin disease and could be adapted for other skin diseases and visible differences in general.

JMIR Formative ResearchVol. 9
Universität Hamburg (DE), University Medical Center Hamburg-Eppendorf (DE), Riga Stradiņš University (LV), Hochschule Fresenius (DE)
Deutsche Forschungsgemeinschaft, Universitätsklinikum Hamburg-Eppendorf
Openalex Percentile: Top 89%
Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
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