Strengthening Parental Capabilities: Examining the Role of Interdisciplinary Support in Enhancing Parental Well-Being and Capabilities in Developmental Disability Care

Purpose: The purpose of this study was to explore parents’ lived experiences raising children with developmental disabilities (DDs), examine their emotional and physical challenges, and investigate the role of interdisciplinary support in strengthening parental capabilities. Materials and Methods: A qualitative descriptive study was conducted using two focus groups (n = 23 parents). Data were analyzed using Braun and Clarke’s six-step thematic analysis. Results: Five major themes emerged: (1) acceptance and emotional journey, (2) healthcare system navigation challenges, (3) educational and community integration barriers, (4) the development of coping strategies and support systems, and (5) resilience and positive growth. Parents reported significant emotional challenges but demonstrated remarkable resilience when supported by comprehensive care systems. Conclusions: The findings highlight the need for integrated support systems that address both the practical and emotional needs of parents raising children with DDs. Healthcare providers and community stakeholders must work collaboratively to create more inclusive and supportive environments for these families.

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Publication Details

Journal
Social Sciences
Published
2025-05-22
DOI
https://doi.org/10.3390/socsci14060321
Citations
4
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
9.23
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article

Strengthening Parental Capabilities: Examining the Role of Interdisciplinary Support in Enhancing Parental Well-Being and Capabilities in Developmental Disability Care

Gérard Filies, José Frantz, Lumka Magidigidi-Mathiso
4 citations
Social Sciences
Family and Disability Support Research
9.23
article

Strengthening Parental Capabilities: Examining the Role of Interdisciplinary Support in Enhancing Parental Well-Being and Capabilities in Developmental Disability Care

Gérard Filies, José Frantz, Lumka Magidigidi-Mathiso
article en
4 citations

Abstract

Purpose: The purpose of this study was to explore parents’ lived experiences raising children with developmental disabilities (DDs), examine their emotional and physical challenges, and investigate the role of interdisciplinary support in strengthening parental capabilities. Materials and Methods: A qualitative descriptive study was conducted using two focus groups (n = 23 parents). Data were analyzed using Braun and Clarke’s six-step thematic analysis. Results: Five major themes emerged: (1) acceptance and emotional journey, (2) healthcare system navigation challenges, (3) educational and community integration barriers, (4) the development of coping strategies and support systems, and (5) resilience and positive growth. Parents reported significant emotional challenges but demonstrated remarkable resilience when supported by comprehensive care systems. Conclusions: The findings highlight the need for integrated support systems that address both the practical and emotional needs of parents raising children with DDs. Healthcare providers and community stakeholders must work collaboratively to create more inclusive and supportive environments for these families.

Social SciencesVol. 14(6)
University of the Western Cape (ZA)
Openalex Percentile: Top 2%
Family and Disability Support Research
9.23
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